Thank you Kelly. Haven’t quite gotten the hang of this yet. Yes. I do have other disturbing symptoms. I have these small red dots internally and also visible on my face, lips, toes and fingers, and tongue. They are called Telangiectasia. Sometimes I spontaneously bleed from the ones on the surface of my skin, but most often i bleed profusely from my nose.
As I’ve aged the bleeding from my nose has advanced to a stage where I bleed so much blood, so fast for up to twenty or more minutes, that I can choke on the huge clots that form when I try to inhibit the flow in any way.there are times that I bleed like a water faucet tap turned fully on. It is scary for me and frightening for others to see. And I have to carry a big packet of tissues wherever I go. Even in my own home because there is no warning.

Have not been tested but apparently am a carrier and have passed it on to all my children. The only symptoms I have had are nosebleeds when I was younger and the red dots on the palms of my hands, inner lips. My eldest (59) was just recently diagnosed with HHT, second (57) has had brain surgery twice; first was emergency brain bleed and second was preventative. Third (54) brain surgery to remove an avm, fourth (51) avm removed from lung. My grandson, 15, surgery next month to remove avm from brain. My Mother’s two sisters’ families have also been diagnosed with HHT and being treated for avms.