Hi @karaf8 , did you have some sort of episode (DVT or PE) and that's how you found out? I think it's normal to feel that it's life changing, and it is, but that said I'm in my mid 50's and I've had it my whole life but I just didn't know it. A lot depends on if you have other things going on also, to determine how much daily impact you may experience. I just wanted to post and say you can indeed have a happy and full life. I remember when I heard the news too, but there's lots you can do to minimize risks and that's what I'm trying to focus on. I figure I beat the odds twice (first time I was not treated long term as we didn't know I had the condition) andI'm still here. It's a gift to be alive and I'm determined to live life with that focus. Hang in there!