@garlamba Thanks for sharing your daughter's experience. My doctor said my daughter would have to be treated when having a baby too, but I have not yet gotten any details as she will be seeing her own specialist where she lives (she is not pregnant, but does plan to hopefully have children in the future) Nice to see you have been told similar as to what my hematologist here said. Thanks! If it helps, I never had any issues with either of my pregnancies (and I obviously have had this my whole life) just my two weird episodes in 40's and 50's. So if your daughter can stay fit and healthy as she ages, her chances will be less likely as well. If you learn anything new about this gene disorder if you will please keep me posted and I will you here as well. Thanks again!