← Return to HIGH Factor VIII (8) Blood Clotting Disorder and Impacts to life/COVID

Discussion
Comment receiving replies
@heidi2020

I know High Factor VIII is very rare, that's why I was so hoping I'd find others here. Someone said one in a million, but I have not verified that statistic to know if it's true or not.

Jump to this post


Replies to "I know High Factor VIII is very rare, that's why I was so hoping I'd find..."

I have factor vlll but I must be low because my hematologist felt I did not need medication. I didn't realize it was that rare?

I was just diagnosed with factor 8 today I’m devastated

also from what I found it doesn’t look like it’s as rare as we may think this article says it’s found in 11% of the adult population

I think at one time, they did think it was one in a million. That's what I was told when I was diagnosed 20 years ago. Hopefully, they had more current information now but my understanding is that it is still considered rare.

See my blood test results
High factor 8 at 261 %
(That test comes even after being on blood thinners for 3 months which for me is concerning. See the doc again in a couple months.)
V factor negative
DVT has brought this diagnoses to me since there is no explanation as to why the DVT

  Request Appointment