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Bladder Cancer: Finding a Specialist

Bladder Cancer | Last Active: Feb 19, 2023 | Replies (39)

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@colleenyoung

Hi @judith4, I'm inviting fellow members @nvmoen @pameladstone @katydid77 and @sue225 to join this discussion to share their experiences with bladder cancer surgery with or without total removal of the bladder.

Judith, how did you husband do with the BCG treatments?

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Replies to "Hi @judith4, I'm inviting fellow members @nvmoen @pameladstone @katydid77 and @sue225 to join this discussion to..."

My husband has high grade highly invasive urothelial cell carcinoma, and had a partial bladder resection a year ago last September. THe mass was in a pouch off the bladder...diverticulum....so that was removed. He had one positive lymph node so he had cisplatin and gemzar chemotherapy and then started on BCG. He had a TURP last week to check on a spot they have been watching on cystoscopy and it is a recurrence. Have not spoken with the surgeon yet about next steps. At least this one was not invasive into bladder wall like the first one. Mayo Rochester has provided good care, but we have found working with the urology department is not as easy as working with ENT and Oncology, as I have for the past 8 years.