← Return to Icy feet and ankles with Small Fiber Neuropathy....anyone?

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@offthegrid

I have the same cold feet people here are talking about. Sometimes they actually are freezing cold but I think they are cold pretty much all the time - like a burning cold. In the winter the rest of my body like the room fairly cold so my feet get so cold I can't get to sleep unless I warm them up with a heating pad that I wrap around my feet. I have to be careful though not to burn my feet!

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Replies to "I have the same cold feet people here are talking about. Sometimes they actually are freezing..."

Hi @offthegrid I too experience cold and hot with both my hand and feet. My neuropathy is not bilateral only the left side is affected. It is important to find out the cause of the condition, if possible, to help stop the progression. My cause was the surgery to repair my ruptured AVM. So my condition is NOT ongoing for the neuropathy to worsen. Sorry to hear you are experiencing those awful symptoms. Perhaps a circulation problem is hindering the nerves with the proper nutrition for them to keep living. My blood supply was cut off thus killing my nerve cells. The reaction is for the remaining nerves to become excited causing the hot and/or cold feeling. I too have to cover or uncover my leg and arm. Doing exercises improves the circulation and may help with your neuropathy. I feel exercise has helped me but it is a slow process. @johnbishop and others do exercises as well for regenerating nerve cells. Each case is different so be patient in learning how to help yourself. Glad you are asking the questions. We will gladly help in any we can. Wish you the best!

Me too. It can be 90° out and i will put socks on, especially to sleep. I always preferred socks most of my life for sleeping but I am pretty sure mine got much worse with pregnancy as i retained a ton of water and my legs and feet really swelled- i think it damaged my blood vessels, especially in left foot because it aches all the time. Add in the cold of winter and even socks and slippers and an extra rug under my chair for the cold floor does not help. I like those rice bags to get in the microwave to make it bearable.