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mamabear62 (@mamabear62)

Anyone had Spinal stimulator removed? Replaced?

Spine Health | Last Active: Mar 29 2:22pm | Replies (23)

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@texasaviatrix

Hello Chris and thank you fir your reply.

To clarify, I am not currently contemplating any surgery. My tailbone was snapped off at the sacrum and shoved up into my body as a result of a hospital accident. We can only assume that I was dropped while I was unconscious, probably when being transferred from the operating table to a gurney for transport to recovery. I say that, because there was no record of anything bad happening to me and it was my word against theirs. Although I came out of the minor surgery with severe lower back pain, I wasn’t diagnosed until 5 months later.

The pain was so severe, that I was basically bedridden until I found a neurosurgeon who was willing to remove the tail bone. The surgery and recovery was a success, and I thought my troubles were over. It’s a VERY long story, but in a nutshell:
I developed new pain about a week after the surgery. I’ve been told that I have everything from SI joint disfunction to periformis syndrome, a luxated pelvis, and cluneal nerve entrapment.

I’ve had everything from physical therapy to chiropractics, Accupuncture, too many cortisone injections to count, every anti-inflammatory, muscle relaxer and pain med known to man and multiple nerve ablations. I had a morphine pump for 8 years (which malfunctioned 6 years into its life) and then swapped it for a spinal cord stimulator 4 years ago…which had been absolutely useless.

The only short-term relief I get is by taking a combination of morphine and hydrocodone. I can only take it once a day, so I save it for evening, when the pain is at its peak, so that I can get some sleep. That’s the short story. I’ve had 3 pain management docs. When the second one ran out of things to try, he announced that he was taking me off all opioids (my only relief) because I’d “been on them to long”. Now my third doc tells me he is no longer prescribing them because the government is making it too hard to do. I have to find another doctor within two months when my meds run out. This is no way to live.

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Replies to "Hello Chris and thank you fir your reply. To clarify, I am not currently contemplating any..."

@texasaviatrix So you have 2 months to find a new pain doctor? How can these MD’s live with themselves? Your pain has got to be unbearable! Our wise faithwalker007 has posted some legal information regarding opioids and quality of life that you might be able to use when you see a pain doctor. I am so sorry there is nothing I can do but pray for you and be here if you want to write.