← Return to Eyes and Neuropathy

Discussion

Eyes and Neuropathy

Eye Conditions | Last Active: Dec 23, 2023 | Replies (299)

Comment receiving replies
@bustrbrwn22

@phoenix0509. I am so sorry about your eyesight. Not that this is anything close to what you have to deal with but now I am grateful I had such bad reactions to all the meds I tried for my interstitial cystitis or I might be having vision issues on top of everything else and there ain’t no pill for that. You are a brave soul.

Jump to this post


Replies to "@phoenix0509. I am so sorry about your eyesight. Not that this is anything close to what..."

@bustrbrwn22 , it was nice of you to reach out and show concern about my eye conditions. At the moment the eyes are stable, I do have some photophobia (shooting stars) in right eye which show up when its dark inside or outside. For my dry eye syndrome I use Restasis (cyclosporin) eye drops per the Ophthalmologist. My biggest problem is pain in all extremities which is continuous since attempting to decrease my prednisone that I take for Polymyalgia Rheumatica. Which has lead me to question the original diagnosis of PMR. I am trying to be seen at Johns Hopkins in Baltimore for this widespread radiculopathy like pain. So if anybody has a connection to Neurology or Neurosurgery at JH. send me a note. Initial review of neck does not show obvious problems. Got to look again and think outside the box. Best, david