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Eyes and Neuropathy
I would love to hear from folks who have peripheral neuropathy and eyes problems such as worsening dry eye and photophobia (light sensitivity). Has anyone been to a neuro opthamologist for this and been advised of the correlation? What did you learn?
My eyes have mitigating circumstances.... beginning with Fuchs Dystrophy (cornea disease) requiring cataract and cornea transplants, intractable migraine and Small Fiber Polyneuropathy...all of which play off each other. Photophobia, for me, has been constant since prior to eye surgeries and increasingly worse after. Migraines create photophobia and vice versa. SFN is nerve damage/dysfunction which for me has created hyperalgesia (overactive and hyper sensitivity). The cornea contains the highest number of small fibers in your entire body. My ongoing dry eye is developing along with intense flares of light sensitivity. I feel like a vampire...it puts me down, to bed, in hiding. As I explore how to tackle worsening dry eye, I came across this link that opened my mind further and thought maybe it might help some of you who have dry eye and neuropathy.
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@sunnyflower Good researching Sunny! Yes, I've seen 2 neuro-opthamologists. One before my neuropathy diagnosis and one after. I didnt get very far either way in answers other than agreeance that neuropathy causes my problems. The reassurance was comforting I suppose. Worth a check into for those who have neurological eye concerns.
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2 ReactionsGreat tip Chris! Thx! Take care. 😊
John, I will pray that God has mercy on you and that you don't get macular degeneration. 🙏🙏🙏🙏 Sunnyflower
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1 ReactionThat is so great that you found a neuro-ophthalmologist or to even! By the way, did your insurance cover those doctors? Were they preferred providers on your plan? Yes, I would think it would be some comfort that you know what is causing the problems. Sometimes validation is really helpful! Many blessings, Sunny flower
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1 Reaction😊
Thank you @sunnyower. I appreciate all the prayers.
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1 Reaction@sunnyflower Yes, both were covered. The first was about 5 years ago on a referral from my cornea specialist and the second was this summer through Medicare.
@sunnyflower Yes ma'am, I was covered both times. Once by a high deductible plan after being referred by my cornea specialist and the other by my current Medicare plan. I hope this evening brings you comfort. 🤗
Rachel
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1 ReactionHey John, when people don't sign their names at the end of their post, I don't know who is writing bc I can't remember who belongs to what last name or "handle" they use that isn't their name. It makes it very difficult to reply to that person by name
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2 Reactions@sunnyflower
Hi Sunny, yes not everyone feels comfortable using their real names here. I think they are trying to be careful. The internet is, as you know, attended by some very bad people along with the 99% good and well meaning people. And some people are trying to be as safe as they can.
I try to remember everyone by their handle or Mayo name. I suppose if someone wanted to, they could make a list of each person's handle they want to remember and write a few notes with each one to remind them of who they are. I try to do it in my brain which is hardly a perfect way to remember. If you click on their handle (I am talking about the @<name> thingy in blue), you will be taken to their profile page and you can read some of their recent posts as a refresher. I don't know how to go back very far in their post history though. Best, Hank
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