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Eye Conditions | Last Active: Dec 23, 2023 | Replies (299)
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Replies to "I have CIDP and have no luck from any of the neurologists I’ve been to. I’ve..."
Hello, I am probably the last to know this but just did a search to see if there is a neuro-ophthalmology specialty and there is! Sounds like that would be who you, myself and those of us with these symptoms should see. All the best, Sunny
Hello @harley22. Welcome to the conversation. I believe you are responding to me @rwinney? I have read some of your posts and do have heartfelt sympathy for your CIDP condition. How have IVig treatments worked out for you? I'd like to know. What a miserable time of things from body to eyes. It gets confusing to differentiate between causes of age or diagnosis. I never understood, nor did my opthemologist or neuro-opthemologist, why my eyes were so light sensitive. It had been blamed on scar tissue from my surgeries for 7 years. I began cross researching and understanding, since my Small Fiber Polyneuropathy diagnosis, that nerve damage, is nerve damage, and in my case and probably yours, it affects many parts of our bodies. including our eyes. There does not seem to be a way out other than what we adjust in our daily lives to compensate. For my photophobia I wear baseball hats, different shades of sunglasses according to light situations, car visor down, lights and lamps dimmed or altered, etc...Dry eye....well, drops, warm wash clothes, avoid fans, wind, air conditioners.....blah, blah, blah! What can we do, right? It stinks but, we must prevail and keep fighting as best we know how. I wish you peace and comfort.
Rachel