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Eyes and Neuropathy

Eye Conditions | Last Active: Dec 23, 2023 | Replies (299)

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@jimhd

@pjfrahm I mostly use my phone for emailing and shopping, and I don't know how to share links. I mentioned a discussion, and see it in the neuropathy group. The discussion is Member Neuropathy Journey Stories: What's Yours?

Having multiple issues sure can make it a challenge to treat them all without drug interactions. Last week I met with a neurospecialist to discuss the possibility of a DRG stimulator implant, but before we got to that, she showed me the MRI I had done several months ago. I was supposed to have spoken with her about it long ago, but Covid19 delayed everything. She showed me the spinal stenosis which is impinging the cluster of nerves in my spinal column, and quite possibly causing some of the pain in my feet. I'd love to have the surgery done ASAP, but I can't be recovering from surgery when I have so much to do all summer. I can't just tell the garden and landscaping to understand why they won't be getting watered. I am hopeful that the work on my back will reduce my pain. It sounds like you need a great doctor like this neurospecialist. She doesn't limit her perspective to only the small field of neuropathy, or only to treating the symptoms.

So, I'm enduring the pain until the end of September. It helps to have a goal like that.

Gotta get to sleep.

Jim

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Replies to "@pjfrahm I mostly use my phone for emailing and shopping, and I don't know how to..."

@jimhd Hi Jim, just as an FYI, there are youtube videos about how to share links in case you'd like to learn. I saw one that is just under 2 minutes long which is a pretty good nutshell version. Here it is:

Its called "how to send a link in an email" but it works just as well in other venues like on Connect, etc. There are a bunch of other videos about the same subject, some longer (one was over 9 minutes -egad!). Best to you, Hank

That's great she has some plan to help you. If you don't mind, could you tell me which neurospecialist you are seeing? I've been seeing a neurologist at Mayo and each time I've brought up the connection between my spine issues, he looks at me like I'm njuts and never bothers to answer me. Its extremely frustrating. I KNOW there has to be a connection as my issues with my feet didn't start until after I had a spinal fusion in 2002 and has progressively gotten worse over the years. I had some pretty strange tests done at Mayo at first to attempt to figure out the extent of it all at that time. There was a heat test and of course a couple EMG's (which I HATE) and another sensory test. I never heard any results or any suggestions on the results of any of those tests. Anyway, I would love to get some answers.