@pjfrahm

I'm really sorry for your pain. At this point, you could be describing how my feet hurt, though it hasn't been this bad as long as yours.

Gabapentin was no help for me. But then, nothing else has, either.

When I talk with my various specialists - eyes, swallowing, ED, bladder, muscle tone, balance - I ask them if the problem is related to neuropathy. The answer is always "maybe. Could be." Even the head of neurology at a very good teaching hospital said those helpful words.

I had cataract surgery on both eyes a year ago, and my double vision has become progressively worse since then. I brought it up several years ago, but at my last visit he believed me and had prisms ground in the right lens of my glasses, which helped for awhile. Esophageal dysmotility could also have neuropathic involvement, as well as tinnitus, my vision getting blurry until I get them to refocus.

There are different kinds of neuropathy, of course, which really confuses diagnosis and treatment. Has a doctor talked with you about autonomic neuropathy?

I've tried a few medications that reduced the pain, but they either had unacceptable side effects, or they quit working. Sorry. Not very encouraging.

PN seems to be uncharted territory to a great extent. Treatment seems to be a hit and miss process.

I don't know how to send you to a discussion thread about the neuropathy journey stories, but I'll tag @johnbishop to help me out. I surely hope that you can find a treatment that will give you some relief from the constant pain.

Jim

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