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not sure if this applies -- couple of years ago I had what I thought was motion sickness or vertigo -- saw my primary care doc and he sent me to a vestibular therapist -- the crystals in my one ear had become dislodged from where they were supposed to be in the ear canals, and after about 5 or 6 treatments, it was gone and I have not had it since -- I'm not saying this is your situation, but it might be worth checking -- fortunately I belong to a large clinic with a large PT department, which had only 2 of these therapists -- there is extra training/schooling needed for this type of therapy -- good luck
on another note -- when you look for a neurologist, by sure to ask for a neurologist that knows about or has treated neuropathy --- the person on the phone will say, 'they all do' --- NOT TRUE -- it took me a long time to find a neurologist that actually knew something about neuropathy -- we really do need to be our own advocate and keep asking == and so important to always take someone with you to take notes when you visit any doctor or clinic
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Hi @lois6524 thank you. I appreciate your input. I am glad you found a solution with only a few visits. After a while in dealing with my balance issue and motion sickness, I decided to try vestibular therapy as well. Luckily I found a physical therapist with over 20 years experience in vestibular treatments. We tried the different exercises to move the crystals in my ears. I was so determined to improve that I followed all the instructions including doing additional exercises at home. I gave it a week but saw no improvement at all. Instead I still had the same motion sickness but now I had a terrible headache. Needless to say, i stopped the therapy. A couple days later my headache went away. I am glad I gave it a shot. One less attempt on my list and I know now to move onto another. Thank you for your suggestion. When I look for a neurologist I will ask for one that deals with neuropathy. I may be able to get more info. My neuro surgeon who caused my neuropathy told me it would eventually go away. It is going on 4 years now and I still have it. It hasn’t gotten worse. Maybe slightly improved, hard to tell. Keep on advocating for yourself. I am glad to hear you are looking out for you regarding your health.
@lois6524 So true about the ears and those ear exercises . I had the similar thing and the ENT sent me to the Vestibular Dr. After putting me through a lot of different test the Dr. said it was the crystals that where out of place and for a month I had to do these exercises 2 x a day and haven't had any since that bad . One time I felt dizzy and did the exercises and that was all so far I haven't had anymore .
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Hi Lois, I may know exactly what you are referring to (or not). My wife had vertigo and she and I used something on her called the "Epley Maneuver" to get the stray crystals back into their correct locations in the inner ear. We did this by referring to a Youtube video. I don't know which one we watched but here is one I found that goes through the same steps essentially:
Anway, it sounds like you might be describing this Epley thing that we did or something similar. It was totally easy and successful when we did it. Regards, Hank