Hi Rachel. I have neuropathy but do not know if it affects my eyes. I do have a neurological disorder where the nerves cannot control my eye muscles particularly the motion looking inward and downward. Those muscles are stronger in one eye causing each eye to have a different image, hence the double vision. I have learned that eye strain can cause dry eye and photophobia. My double vision is due to the AVM. I was told at first to let my eyes settle down which I did. The distance between the images of each eye improved but they never conformed. After struggling 2 years, I developed the dry eye and photophobia. I have limited the use of sunglasses to only outdoors since total darkness for long periods of time can worsen the condition. Because of the double vision, I experience motion sickness which stops me from many activities. I am hoping to find a surgeon that can correct my eye positions to eliminate the double vision causing the motion sickness.
Sounds like you have also experienced eye strain causing the dryness and photophobia. Have you seen another ophthalmologist for a second opinion In getting any relief? How long have you been dealing with the dryness and photophobia? Did the condition worsen?
My neuro ophthalmologist discussed surgery being a possibility but there are risks involved I need to think about. I am sure you have experienced that too with your eye surgeries. Any surgical procedure to correct my eye muscles will be permanent. I don’t know if this information provided any help for you. Keep searching. I hope you will find answers to help you. Good luck and I wish you well. By the way, I received my new online glasses with the clip-ons for sunglasses. The magnification on each lens is perfect. I like the bifocal lines better because I do not get the dizziness as I did with the progressives.