I too, have EPI and was misdiagnosed for 30 years struggling with a miserable lifestyle of constantly running to bathrooms no matter where I happened to be…ugh. It eventually led to ulcers, chronic gastritis, malnutrition, fainting once a week and free fall weight loss.
I finally went to a THIRD gastro practice and a PA suspected EPI. They told me it is genetic and passed from mother to daughter, which made sense because my mother indeed suffered mightily with the same symptoms and was never diagnosed.
I now take Zenpep and maintain a highly disciplined nutrition lifestyle and am now very healthy.
There is so much disinformation surrounding “gut health” and useless “digestive supplements” that are a complete waste of time and money.
My hope is that anyone suffering with IBS-D type symptoms, ulcers, chronic gastritis, carb cravings, nausea, fainting, and finally inexplicable weight
loss, NEVER give up seeking a gastro practice that will LISTEN.
I never dreamed my life would be this good! There is hope, but you have to stubbornly advocate for yourself!!!