It’s gotten so bad for me have had for over 15 years. TERRIBLE when I wake up, like it’s the only thing my brain has listened to all night and it takes a while for it to tone down. It’s really a kind of torture, such loud screeching, high pitched sounds. Loud noises really affect now too, painful and dulls down my hearing.
Hard when family can’t understand what I’m going through and get upset with me because of all the noise in my ears/head.

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