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Do you have pre-seizure issues or symptoms?
Epilepsy & Seizures | Last Active: Mar 20, 2021 | Replies (39)Comment receiving replies
When I began having my seizures (at 6 1/2) I used to say Mommy/Daddy "something scares my tummy" and I would grab hug them because of my fear. I had a convulsion and almost drowned in the tub in it and then went to a pediatric neurologist. He said I had visceral epilepsy and put me on anticonvulsants. The convulsions stopped but the seizures didn't. I stopped grabbing hold of people in public, I just threw myself on the ground and screamed. I tried many medications none were successful so they did a partial right temporal lobectomy. Seizures persisted despite other medications so a doctor at Montreal Neurological Institute performed a partial lobectomy. This surgery only made the seizures nocturnal. They were not controlled. Seizures are now like nightmares. I scream "Laurie, Laurie." I still have have an aura of fear. (After all this surgery there is almost no part of my right temporal lobe left)
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I know exactly what you mean when you said you would say something scares my tummy. I'm in my 50s and that's how a lot of my auras would start or I would have a strong de ja vu feeling. The last one I had was almost like being on a roller coaster right before you go down that big hill. I was picking out beef in the store and when I looked down, I felt that feeling when you go speeding down a steep hill and it gets your stomach. Then the meat looked farther and farther away and almost like I everything turned to tunnel vision. I'd never had one like that. The next thing I knew I was in an ambulance. They are horrible. I wouldn't wish them on anyone.