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DiscussionPulmonary Fibrosis: My husband is ready to give up, how can I help?
Lung Health | Last Active: Sep 9, 2021 | Replies (27)Comment receiving replies
Replies to "How to fight. My husband was just diagnosed yesterday. His brother had died from it, and..."
Hi Mary. I am sorry to hear about your husband's diagnosis and especially the family tie. I recently watched Noah Greenspan on YouTube. This video was very informative. Dr Kaner was a guest and he gave information that I had not seen explained in such detail before. Just as important was the other guest who at that time had had IPF for three years and what he was doing to keep himself as heathy as possible. That vid is 5 years old and I googled the guest, Bill Vick and he looks to be doing just as good now. He's part of PF Warriors and it's in TX I believe but they are on FB. A support system from others going through the same thing is important. I wish your husband, you and your family all the best.
@maryflorida- Good morning Mary. Pulmonary fibrosis can be inherited, but symptoms will show up later in life. But this is rare. Pulmonary fibrosis occurs when lung tissue gets thick and stiff. That makes it hard for you to catch your breath, and your blood may not get enough oxygen. Causes of pulmonary fibrosis include environmental pollutants, some medicines, some connective tissue diseases, and interstitial lung disease, and rarely genetics.
That must have been just awful for your husband to watch his brother die from a disease that he now has. You must both must be horrified and scared. This is a time to help with giving him all your support, help with research to find out everything that you can. Knowledge is power, or you both might already know a lot because of his brother.
https://www.pulmonaryfibrosis.org/life-with-pf/pulmonary-fibrosis-treatment-options
https://www.pulmonaryfibrosis.org/medical-community/health-provider-resources/familial-pulmonary-fibrosis-for-patients
Here are some suggestions to keep him comfortable.
Try and find the most comfortable positions for him so that his breathing isn't taxed more than it already is. Has his doctor suggested any treatments?