← Return to Donating my kidney: Any tips? What do you wish you'd known?

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@danhoe

Jolinda, Sorry for the delay in response. I had a couple of days where I was extremely weak but thankfully I feel much better. How precious to have that shared gift with your friend, Dawn. I do hope to someday meet the person I who now has my kidney. I wonder about and pray for the person everyday. I also hope to meet the person I started this journey for someday. I heard about a person in my Bible study that had a half sister that she had met once that was in need of a second kidney transplant. Her first didn't work. She has young children and I began praying. It quickly began clear that I was supposed to step up. I filled out paperwork and waited quite awhile before I was contacted. Once I was contacted I had a few weeks of testing and appointments. I was not a match for the person I had named but I found out I could start a chain and potentially help more people by giving my kidney in a paired chain. I agreed to give my kidney to someone with the idea of the person I named being moved to the top of a nation wide pool that includes living donors. She has about 1% of finding the right match. I could wait until she found a match or I could give in advance. I decided to give in advance. My information went out on the National list and within a few hours my nurse was calling that a match had been made and a date was set. My team at Mayo was amazing and with each conversation they would always ask if I had any questions and I always ask. Is there any information you can give me about my recipient 😊 Someday if the recipient wants to know about me we will hopefully meet. Until then the paired chain is in effect and someday it will be exciting to hear how many people received kidneys in this chain to reach my first named recipient (whom I also hope to meet). So, that's my story of donation. Yesterday and today have been great days and I'm healing well.

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Replies to "Jolinda, Sorry for the delay in response. I had a couple of days where I was..."

You are remarkable! So very many lives you have touched! And some you may never know, but know this: they are all grateful to have you share your strength.

@danhoe Tammi, I am so impressed by people like yourself who do this for people they do not know. I am always bewildered though by people who are prepared to donate an organ to a person they know and when they are not a match will not agree to a paired donation. That will help the person they care about too, to me it just does not make sense.

If I knew then what I know how I would like to think I would volunteer to help someone. I suspect my husband would be totally opposed though out of concern of any potential side-effects on me.
JK

@danhoe - Tammi, Thank you. Thank you for your gift of kidney donation and for sharing your story. I also want to thank you for explaining how a paired kidney chain works. I did not know that a chain could remain in effect until your designated recipient receives a transplant when there is a match.
Will you be informed when your own designated recipient gets a transplant?
Will you and or your recipient learn each other's identuties? Is there a protocol for when and how that happens?

I hope that you and your donor will enjoy many happy todays and tomorrows.

Great job. I donated to my brother on 17/4/2019.
I returned to normal life.
Renal function is OK.
It is normal for creatinine to increase for donors.
It was 1.1 before donation and now 1.58
I returned to sports with full capacity and my diet is healthy.
Again you made a great job and you have all respect.

God Bless you!
You are an Easter Morning person in a Good Friday world.
There is no telling how transformative your gift has been, just the thought of it gives me goosebumps.