1. < Neuropathy

Neuropathy in feet and limited toe movement?

Posted by plbelanger @plbelanger, May 15, 2020

Just curious as I was diagnosed with peripheral neuropathy in the beginning of this year but have yet to see a neurologist about it (postponed till end of June due to COVID19). I have constant pins and needles, numbness, pain in both my feet. It's gotten worse over the years (been dealing with it for ~10 years and never went to a doctor about it due to lack of insurance) and now I can no longer even bend my big toes at all and even bending any other toes are rather difficult. Just wondering is this common...anyone else have this?

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lorirenee1 | @lorirenee1 | Jul 25, 2020
In reply to @johnbishop "@rwinney I know you are too young to remember Burma Shave signs along the road. They..." + (show)
@johnbishop

@rwinney I know you are too young to remember Burma Shave signs along the road. They were a real treat for us kids driving down the highway with mom and pop - reading the signs one at a time out load until you had the whole phrase. Loved those memories. Now if we could just plant some alongside the highway on your trip it could take your mind off of everything else 🙂
http://burma-shave.org/jingles/
Imagine driving down the road at 60 MPH and reading these signs one at a time to find out what the saying is. This one was one of my favorites from 1963.

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@jimhd I do remember Burma Shave, but not these jingles! What a hoot! Love this one!!! Lori

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1 reply
lorirenee1 | @lorirenee1 | Jul 25, 2020
In reply to @lorirenee1 "@jimhd I do remember Burma Shave, but not these jingles! What a hoot! Love this one!!!..." + (show)
@lorirenee1

@jimhd I do remember Burma Shave, but not these jingles! What a hoot! Love this one!!! Lori

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@jimhd I just went to the Burma Shave link and read many of the road side quips. Quite funny and clever! I adore poetry and write poems quite frequently. Look up Ogden Nash poems. I think you would just love them, as many have that quick, intelligent, Burma Shave feel. Thanks for sharing. I am now gonna go read some more! What a riot! Lori

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 25, 2020
In reply to @lorirenee1 "@rwinney Rachel, Oh Rachel, Oh Rachel!!!! What you are enduring!!!! This list is unbearable. Brutal. You..." + (show)
@lorirenee1

@rwinney Rachel, Oh Rachel, Oh Rachel!!!! What you are enduring!!!! This list is unbearable. Brutal. You so clearly have autonomic problems along with your small fiber problems. I am so overwhelmed reading this. I suggest that you prioritize your top 3 or 4 problems, so that the doctors have focus. But actually, your descriptions are variations of the same problems hurting various parts of your body. I still would start your final copy with the top 4, right on top. You obviously need testing for the autonomic stuff, too. I do too, actually, as I suffer from getting overheated and totally sweaty, out of the blue. I also feel like my feet are soaked, when they are not. I wish I could wave a magic wand and POOF!!!! All of us are better. By the way, this has nothing to do with sickness; my son also works in pharmaceuticals. He sells the high end cancer drugs to docs, hospitals, etc. One pill can be over one thousand bucks. Is there something wrong with that, or what??? And BIG PHARMA laughs! My son's sales goal for last year was 6 million dollars. Ha! Love you, Rachel Lori

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W O W ! ! ! Crazy stuff.

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Leonard | @jakedduck1 | Jul 25, 2020
In reply to @rwinney "@jesfactsmon Sadly, yes I have. It's an ongoing list which I have sent to Mayo for..." + (show)
@rwinney

@jesfactsmon Sadly, yes I have. It's an ongoing list which I have sent to Mayo for my file. Here it is in all its messy glory.

A few things have settled or shifted since supplementing B12, taking Lyrica and the supplement protocol, but mostly I seem to be stuck with lasting problems. However, I continue to work on them everyday between PT, mild walking and body movement as tolerated and mindset. My PT was waiting until after Mayo to start an occupational therapy regimen, as now he only performs myofacial release once a week and rotates body parts to where the pain is at it worst. I cant wait until October for that. I've been waiting long enough. So, last week he gave me 4 mild, beginner exercises to start for my back. He had wanted to work off of Mayos designed plan for me. But, time is a wasting!

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@rwinney ,
WOW that’s some list!!
Are you sure your not a hypochondriac or have Munchausen syndrome? lol
Regardless whoever gets that list is going to earn their money or just give up, one of the other. I know your symptoms aren’t funny but when I saw the size of that list I did chuckle.
Jake

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 25, 2020
In reply to @jakedduck1 "@rwinney , WOW that’s some list!! Are you sure your not a hypochondriac or have Munchausen..." + (show)
@jakedduck1

@rwinney ,
WOW that’s some list!!
Are you sure your not a hypochondriac or have Munchausen syndrome? lol
Regardless whoever gets that list is going to earn their money or just give up, one of the other. I know your symptoms aren’t funny but when I saw the size of that list I did chuckle.
Jake

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@jakedduck1 I understand your chuckle Jake.🤣 I chuckle myself at the ridiculousness of the situation. I want to clarify that this personal list, which I'm obviously not shy to share and keep things pretty real, is a compilation over the past, ohhh 2-3 years. I started the list because I WAS feeling like a hypochondriac and needed to write symptoms down for validation that they were actually happening, and to reflect on my health as a whole. Trust me, I'd have conversations with my mom and husband about my concerns as things just kept piling one problem after the other. Thankfully, they assured me I was no hypochondriac and medical proof was there. I want to clarify that several entries are repeated and many have ended. The reason I like this list is, it reminds me of how far I've come with symptoms so I can be reminded of progress when I'm feeling down, discouraged and overwhelmed by the symptoms that remain. A method to my madness Jake. I hope you are well and thank you for giving me a chuckle.
Best,
Rachel

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 25, 2020
In reply to @lorirenee1 "@rwinney Rachel, Oh Rachel, Oh Rachel!!!! What you are enduring!!!! This list is unbearable. Brutal. You..." + (show)
@lorirenee1

@rwinney Rachel, Oh Rachel, Oh Rachel!!!! What you are enduring!!!! This list is unbearable. Brutal. You so clearly have autonomic problems along with your small fiber problems. I am so overwhelmed reading this. I suggest that you prioritize your top 3 or 4 problems, so that the doctors have focus. But actually, your descriptions are variations of the same problems hurting various parts of your body. I still would start your final copy with the top 4, right on top. You obviously need testing for the autonomic stuff, too. I do too, actually, as I suffer from getting overheated and totally sweaty, out of the blue. I also feel like my feet are soaked, when they are not. I wish I could wave a magic wand and POOF!!!! All of us are better. By the way, this has nothing to do with sickness; my son also works in pharmaceuticals. He sells the high end cancer drugs to docs, hospitals, etc. One pill can be over one thousand bucks. Is there something wrong with that, or what??? And BIG PHARMA laughs! My son's sales goal for last year was 6 million dollars. Ha! Love you, Rachel Lori

Jump to this post

@lorirenee1 Thanks for your concern Lori. You can read my reply to @jakedduck1 and understand a bit more. The compilation will be cleaned up, narrowed down and prioritized. I'm happy and relieved to leave a lot behind but, would like Mayo to understand my journey to this point, as they hopefully help me let go of the past, handle the present and hope for the future. I'll be ok. I'm a tough cookie, like you.
Hugs, Rachel

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1 reply
Hank | @jesfactsmon | Jul 25, 2020
In reply to @rwinney "@lorirenee1 Thanks for your concern Lori. You can read my reply to @jakedduck1 and understand a..." + (show)
@rwinney

@lorirenee1 Thanks for your concern Lori. You can read my reply to @jakedduck1 and understand a bit more. The compilation will be cleaned up, narrowed down and prioritized. I'm happy and relieved to leave a lot behind but, would like Mayo to understand my journey to this point, as they hopefully help me let go of the past, handle the present and hope for the future. I'll be ok. I'm a tough cookie, like you.
Hugs, Rachel

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Tough cookie who friend, good. Tough cookie who chocolate chip, bad. You friend, so good. Just do not turn into tough chocolate chip cookie. That be bad. 😉

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1 reply
Hank | @jesfactsmon | Jul 25, 2020
In reply to @jesfactsmon "Tough cookie who friend, good. Tough cookie who chocolate chip, bad. You friend, so good. Just..." + (show)
@jesfactsmon

Tough cookie who friend, good. Tough cookie who chocolate chip, bad. You friend, so good. Just do not turn into tough chocolate chip cookie. That be bad. 😉

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I had a beer with a shot just before I wrote the last post. Just to explain. 👏

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1 reply
Leonard | @jakedduck1 | Jul 26, 2020
In reply to @jesfactsmon "I had a beer with a shot just before I wrote the last post. Just to..." + (show)
@jesfactsmon

I had a beer with a shot just before I wrote the last post. Just to explain. 👏

Jump to this post

@jesfactsmon
Hi Hank,
Perhaps you better forgo the shot and see how it goes. I was so confused, of course it doesn’t take much to confuse me.
Take care,
Jake

REPLY
1 reply
Hank | @jesfactsmon | Jul 26, 2020
In reply to @jakedduck1 "@jesfactsmon Hi Hank, Perhaps you better forgo the shot and see how it goes. I was..." + (show)
@jakedduck1

@jesfactsmon
Hi Hank,
Perhaps you better forgo the shot and see how it goes. I was so confused, of course it doesn’t take much to confuse me.
Take care,
Jake

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Yeah Jake, I was confused too. Turns out that alcohol and writing don't mix. Who knew? That is unless you're James Joyce or Ernest Hemingway. Best, Hank

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