Neuropathy in feet and limited toe movement?

@rwinney I know you are too young to remember Burma Shave signs along the road. They were a real treat for us kids driving down the highway with mom and pop - reading the signs one at a time out load until you had the whole phrase. Loved those memories. Now if we could just plant some alongside the highway on your trip it could take your mind off of everything else 🙂
http://burma-shave.org/jingles/
Imagine driving down the road at 60 MPH and reading these signs one at a time to find out what the saying is. This one was one of my favorites from 1963.

Hah! Love this John! So creative and what a wonderful nostalgic memory for you. 👍🏻😁

@jimhd and @jesfactsmon Here's one for you guys...although I do remember this happening prior to my neuropathy diagnosis, I have tongue flares which leave my tongue highly sensitive and painful to salt and acidic foods, almost raw and any textured food (ex: raisins) scraping over it hurts. I went to an ENT doc about 4 years back and no reason was derived. My neuro just listened, along with all my other symptoms, and culminated SFN. My tongue gets inflammed and feels like (I would think anyway) a cat's tongue....you know, dry, like sandpaper. I literally ice it down or let it wag in a cold cup of water to soothe it. I know, TMI!!! Lol! Hey - if we cant laugh, we cant live. Anyway, I regress from high sodium, acidic fruits, tomatoes, etc... and let it ride out but, it's not pleasant. I used to chalk my oddities up to me being a "delicate flower" but, now I go with that damn neuropathy of mine as the culprit! What a pain in the #*@!!! 🙃

@rwinney I know you are too young to remember Burma Shave signs along the road. They were a real treat for us kids driving down the highway with mom and pop - reading the signs one at a time out load until you had the whole phrase. Loved those memories. Now if we could just plant some alongside the highway on your trip it could take your mind off of everything else 🙂
http://burma-shave.org/jingles/
Imagine driving down the road at 60 MPH and reading these signs one at a time to find out what the saying is. This one was one of my favorites from 1963.

I have the same neuropathy issues as you. Numbness in my feet, especially my toes. Can't bend my toes. Spasms and tingling are almost constant. Mine appears to be genetic as my mother, grandmother, brothers, uncles and cousins have similar symptoms. I went to a doctor at Stony Brook Neurology who's specialty is peripheral neuropathy last Monday and had a genetics test done. Simple saliva test, much like the Ancestry and Hereditary tests you've probably heard about. Results should be back in two weeks. The doctor suspects CMT or HSN but also tested me for MS, Parkinsons and ALS. She doesn't suspect those conditions but wants to rule them out. She said this test will show if any genes known to cause periphrtal neuropathy have mutated. She also wants to do a MRI of my neck. She said that peripherals neuropathy of the lower extremities can sometimes be caused by a pinched nerve in the neck. She mentioned C1/C2 so I assume that's the lowest disk in your neck. But she wants to wait for the results of the resgenetics test before going to plan B given my family history.

Yup, I believe you are right. It's all connected to this nerve illness. You know, for your posts oday I looked for an emoji with a thumbs down and I can't believe there isn't one. Do people think every reaction one has deserves a thumbs up? Crazy.

Have you ever listed out every bad health symptom you have, every single one? It would first of all be interesting to see how many you come up with and secondly whether they might all be related to neuropathy, or if any seem not to be. Just a thought.

@jesfactsmon Sadly, yes I have. It's an ongoing list which I have sent to Mayo for my file. Here it is in all its messy glory.

A few things have settled or shifted since supplementing B12, taking Lyrica and the supplement protocol, but mostly I seem to be stuck with lasting problems. However, I continue to work on them everyday between PT, mild walking and body movement as tolerated and mindset. My PT was waiting until after Mayo to start an occupational therapy regimen, as now he only performs myofacial release once a week and rotates body parts to where the pain is at it worst. I cant wait until October for that. I've been waiting long enough. So, last week he gave me 4 mild, beginner exercises to start for my back. He had wanted to work off of Mayos designed plan for me. But, time is a wasting!

OK, firstly I believe you've got mindset down. Secondly, YIKES! That is some list! I have to look it over. I'll get back to you in a couple days. (Now where's that thumbs down thingy!)

@jesfactsmon Sadly, yes I have. It's an ongoing list which I have sent to Mayo for my file. Here it is in all its messy glory.

A few things have settled or shifted since supplementing B12, taking Lyrica and the supplement protocol, but mostly I seem to be stuck with lasting problems. However, I continue to work on them everyday between PT, mild walking and body movement as tolerated and mindset. My PT was waiting until after Mayo to start an occupational therapy regimen, as now he only performs myofacial release once a week and rotates body parts to where the pain is at it worst. I cant wait until October for that. I've been waiting long enough. So, last week he gave me 4 mild, beginner exercises to start for my back. He had wanted to work off of Mayos designed plan for me. But, time is a wasting!