Neuropathy in feet and limited toe movement?

Thanks, will check it out

I have brutal neuropathy from Amyloidosis and I am also waiting to see a Neurologist for this. I’ve been living with it for over 2 years. Gabapentin really doesn’t do much to alleviate the stabbing pains and the pins and needles. Considering Sonexas treatment. Has anyone tried this?

Hi @plbelanger Beside the pins and needles and the numbness, what kind of other pain do you have in your feet? My wife has terrible burning in both feet which chooses different places to be the most severe from one day to the next, sometimes it's her heels, sometimes the tops of her feet, etc. For the past two months she has been getting some relief using a homeopathic based product called Penetrex. She says she averages about a 30% reduction in pain. Not exactly fantastic, but something. I posted about it several weeks back, here is the link to the page with my post.
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?commentsorderby=DESC#chv4-comment-stream-header
I hope you find some ways to cope with your pain. Peripheral Neuropathy can be a horror show of an affliction. I'm the caregiver who has to has to have his heart broken many days watching the one he loves suffer. All my best, Hank

No burning but whenever I scratch my lower legs or feet I get electrical shock like feelings that shoots through my feet. Also very bad pain that randomly happens in my feet when I walk sometimes.

@prbiruk, I think you are referring to the RST SANEXAS. They have one of those miracle fix videos - https://www.youtube.com/watch?v=K-xDHNB8eBg which is a warning sign to me but it is just my opinion. I tried a tens unit that was very expensive and it did not help me at all. This seems to be another style of tens that will "repair" the nerves by electrical stimulation which is another warning sign for me.

I'm just not liking their too good to be true story but that's just me and my personal opinion. Good luck if you try it and I really hope it works for you. Hopefully some members who have tried it can share their experience.

@plbelanger, my experience with idiopathic SFPN and early stages of LFPN tells me that most neurologists are not terribly concerned
about the origin or cause of the neuropathy. Its been about 10 yrs for me and yes the pain and discomfort has gotten worse. I did well with Lyrica 150mg 2 x a day but even this dose had to be increased over the years. I also had surgery for spinal stenosis but it did not make the neuropathy pain and better but it did help the radicular pain i was having in my left leg. Perhaps for now focus on what works to make your neuropathy more tolerable. September will be here soon enough and most likely there will not be any further answers to a cause for your neuropathy. Best, David

@dckuke I am also anking this question of this group. When or do you just stop with the doctors and the neurologists and just try to manage as best you can. I am at that point. I have idiopathic peripheral neuropathy and idiopathic lymphdema, I take 600 mg Gabapentin nightly and amatriplaline (can't spell this morning), but is is Elavil and for neuropathy pain. I don't even know if it works. I keep taking it thinking I may feel worse if I don't. I am a pain management patient so I am able to obtain percocets so far with no problem. I thank God for this, but then worry about the addiction. I am able to take 3 a day and sometimes a 1/2 at night. That is in the middle of the night when the pain makes it impossible to sleep. I have tried to manage without them, but it is not worth the pain. It seems to e the doctors just believe you make the best of it and do your exercise, take the gabapentin and get on with the difficulties with the neuropathy and "Enjoy hte Pain" I know that is not so. When do you do that though. I hear this is damaged and this is damaged and you won't get that back. I can hardly walk at time. Pain in my feet, ankles and legs bring me to tears and then I ask myself why do I worry about taking a pill that helps some. My ability to do things that I love is gone. I want so bad to swim in the ocean and I WILL despite the fact that once in my legs will be unable to get me out. Hopefully that is covered by the many good friends who will also be there to help me. I am pushing. I don't want anyone to think I am giving up, but what I am asking is when do I step back and acept this is the way it is and will be. So tired of being told, to do this, do that, your not doing that. I am doing this and doing that and I am still in pain and sometimes can barely walk. Would never pass a roadside test.

@summertime4 Kudos to you for articulating this! It's from your heart and I am thankful to you for writing it. You have spoken for myself as well, and I'm sure many others. These are thoughts and questions I struggle with daily while on the rollercoaster of doubt, what if's, questioning pain meds and feeling guilt over their use. I wish I had an answer for you.

@summertime4 I think it is easy to want to just forget going to neurologists, pain docs, etc., when you have neuropathy. Nothing really works well, and they know it. That is why I just had a DRG stimulator implanted last week. It was a last attempt. Still have no clue whether it is working, but I did reach a point that doctoring seemed pointless. Pain levels so high that my life became impossible to manage with joy of any kind. I wish there were answers in dealing with chronic illness. I do think that the one very good thing that has come of all of this suffering is meeting fabulous people here. I have had more support, more ideas, more encouragement HERE, than anywhere. I am getting tired from surgery, so I will go now. But I am with you. I have some idea how you feel. With love, Lori Renee

Yes! Also, you may want to get on FB. That’s where there are so many groups and you will receive instant responses! Best wishes