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Neuropathy in feet and limited toe movement?

Neuropathy | Last Active: Nov 11, 2020 | Replies (150)

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@summertime4

@dckuke I am also anking this question of this group. When or do you just stop with the doctors and the neurologists and just try to manage as best you can. I am at that point. I have idiopathic peripheral neuropathy and idiopathic lymphdema, I take 600 mg Gabapentin nightly and amatriplaline (can't spell this morning), but is is Elavil and for neuropathy pain. I don't even know if it works. I keep taking it thinking I may feel worse if I don't. I am a pain management patient so I am able to obtain percocets so far with no problem. I thank God for this, but then worry about the addiction. I am able to take 3 a day and sometimes a 1/2 at night. That is in the middle of the night when the pain makes it impossible to sleep. I have tried to manage without them, but it is not worth the pain. It seems to e the doctors just believe you make the best of it and do your exercise, take the gabapentin and get on with the difficulties with the neuropathy and "Enjoy hte Pain" I know that is not so. When do you do that though. I hear this is damaged and this is damaged and you won't get that back. I can hardly walk at time. Pain in my feet, ankles and legs bring me to tears and then I ask myself why do I worry about taking a pill that helps some. My ability to do things that I love is gone. I want so bad to swim in the ocean and I WILL despite the fact that once in my legs will be unable to get me out. Hopefully that is covered by the many good friends who will also be there to help me. I am pushing. I don't want anyone to think I am giving up, but what I am asking is when do I step back and acept this is the way it is and will be. So tired of being told, to do this, do that, your not doing that. I am doing this and doing that and I am still in pain and sometimes can barely walk. Would never pass a roadside test.

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Replies to "@dckuke I am also anking this question of this group. When or do you just stop..."

@summertime4 Kudos to you for articulating this! It's from your heart and I am thankful to you for writing it. You have spoken for myself as well, and I'm sure many others. These are thoughts and questions I struggle with daily while on the rollercoaster of doubt, what if's, questioning pain meds and feeling guilt over their use. I wish I had an answer for you.