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Neuropathy in feet and limited toe movement?

Neuropathy | Last Active: Nov 11, 2020 | Replies (150)
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@plbelanger

Thanks guys for the advice/info. I have a followup in September with the neuro. It's just a been a frustrating experience trying to get answers this year. It took 4 months just to get an appointment with a neuro then COVID delayed it by another 2.5 months. Now I have to wait till the end of September to speak with him again unless I get a response from the patient portal. I understand this is something I'll have to live with it but it would just be great to have an answer as to why I have it to begin with. My question for the doctor was simply what the next steps are to figure out why I have PN. Prior the PN diagnosis I did have an MRI of my lower back done last year where they were looking for a pinched nerve to see if that was a cause but that wasn't the case. The doctor did however tell me I do have degenerative disc disease and then she was the one to order the EMG/NCS test which came back with PN.

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Replies to "Thanks guys for the advice/info. I have a followup in September with the neuro. It's just..."
John, Volunteer Mentor | @johnbishop | Jul 7, 2020

@plbelanger are you using the Mayo Patient Portal? I believe their goal is to respond to secure messages within two business days though, depending on the question, you may get your response sooner. I've usually gotten responses within 1 day, sometimes sooner.

Connecting through Secure Messages: https://connect.mayoclinic.org/page/chest-surgery/newsfeed-post/how-to-connect-with-your-care-team/

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phoenix0509 | @phoenix0509 | Jul 13, 2020

@plbelanger, my experience with idiopathic SFPN and early stages of LFPN tells me that most neurologists are not terribly concerned
about the origin or cause of the neuropathy. Its been about 10 yrs for me and yes the pain and discomfort has gotten worse. I did well with Lyrica 150mg 2 x a day but even this dose had to be increased over the years. I also had surgery for spinal stenosis but it did not make the neuropathy pain and better but it did help the radicular pain i was having in my left leg. Perhaps for now focus on what works to make your neuropathy more tolerable. September will be here soon enough and most likely there will not be any further answers to a cause for your neuropathy. Best, David

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