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When the Primary Caregiver Stops

Caregivers | Last Active: May 21, 2020 | Replies (15)

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@fiesty76

@contentandwell, Be assured that any and all I’ve done for my friend and her guy has been at their request and with their gratitude. While this is certainly a complex time in our lives, for those in my friend’s orbit, it is primarily a heart rending one of concern, apprehension and continuing prayers that she be as pain free as possible.

My sincerest thanks for your kind support and good wishes @lioness, @ginger and @ Indiana Scott.

Scott, I was troubled that home health care but not Hospice was provided when my friend returned home from hospital. Daughter said that she was told by oncologist that as long as my friend was receiving infusions, Hospice was not available. Not sure how many more treatments are prescribed but can suggest hubby ask oncologist about Hospice now.
Years ago, both my mom and sister, once diag. with Stage 4 cancer went immediately on Hospice. Neither of them, however, pursued additional chemo/radiation etc. so maybe that made the difference? You are so right. The degree of additional care and support Hospice provided both them and me made an incredible positive difference for us all.

ContentandWell, My friend’s guy (don’t know how to refer to him; not married but tog. over20 yrs and “partner” connotes a gay relationship to me) had kidney stone surgery in 2002. When he tried to get appt. with same pcp who was his and is my friend’s this go round with kidney, was told not accepting new patients. He did go to hospital ER. Sent home with pain meds and hope that stone will pass; if not, he was given a doc referral while at the ER. While he will do everything in his power to take the very best care possible of my friend, he hadn’t seen a doc since 2002. Efforts by my friend to get him to establish a new pcp fell on deaf ears. Maybe now. Is this reluctance a guy thing??? Vbg

As for my neighbor’s Apple watch not signaling her fall, her niece bought it for her 3-4 months ago so would hope it was the latest model. Maybe it was defective or needed some special set up to be activated? She’s not comfortable yet to have it checked out at Apple store.

@lioness, Thank you so much for this information! Had not heard of VIAL of Life. Site for Free Print Out for EMS : http://vialalife.com/

@gingerw, Yes! After a stroke, 3 yrs ago and before carotid surgery, I updated legal docs and medical directives and created a comprehensive binder which included, doc, med, ins, investment, local service providers like plumber/ electrician, utilities, vet and other with contact info, account #’s, etc. Kept one and sent the other to out-of-state daughter. It needs to be updated because of provider retirements and need for additions. Thank you for providing this timely reminder for me to update that.

I have DNR but with Covid, I’m rethinking whether I want to make that handy for EMS…Shoot,I might be one of the very lucky ones if I became infected. Smiles I don’t have a smart phone but do carry a list of meds, doc contact info, along with local friends/neighbors and daughter contact and who has house keys. I also subscribe to a medical alert sys. whch has immediate contact names and numbers.

@artscaping, I love the pic of this baby and also the wonderful story of Jay’s help in reviving it and others. Is Jay a son? Grandson? Maybe he is a bird whisperer??? So nice!

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Replies to "@contentandwell, Be assured that any and all I’ve done for my friend and her guy has..."

@fiesty76 I got mine from a program here our Resident Social worker brings in diff. programs so this is how we here got out vial of life put it in refrigerator and a sticker on the ref. door . Also my Dr gave me a end of life paper I filled out for her and my ins. has a copy of this and p.o. w . Since I had my P.O .W made in Pa . I was concerned that it would,nt be good here in Ca. but UPS just puts there notary on it and I good to go (haha) have a good day .

@fiesty76 My PCP has not been accepting new patients for quite a while. I know of a couple of people who tried to see him and were turned away. Unfortunately, often the PCPs who are accepting new patients are often quite new of not as highly regarded.
I think that reluctance is "a guy thing". My husband went from 2004, the year he retired, to a couple of years ago without seeing a doctor. When he was working he was at a level where he having an exam yearly by the company doctor was a benefit. He is finally seeing a good doctor and I too have discovered a couple that sound good but are actually accepting patients.

As for the Apple watch, you can still purchase older ones, they are much less expensive. The feature is only available on the 4 and the 5. If you are 65 or older it is automatic, otherwise, you have to set it up. When your watch is new you give it info about yourself that includes your date of birth so your age is known.
I found this online:
https://www.imore.com/how-set-and-use-fall-detection-apple-watch-series-4
I have found Apple to be excellent on the phone to help with problems so she could perhaps call the service center.
JK

@fiesty76. Hi there, yes that is a great man, Jay Adam's who just happens to be my lifetime partner and is 73. Actually, he does have a grandson also named Jay. It is kind of crazy when both Jay's are in the same house. I know it is an honor but it is also a pain. Jay (grandfather) and Jay (grandson) are pictured here.
https://connect.mayoclinic.org/discussion/hey-there-grandmas-and-grandpas-opportunity-knocks/
Be happy today.....just look for the causes of happiness.
Chris