So sad: Husband has glioma and I feel he is fading away

I am miserable. I do have help driving and next week we might stay at a hotel. I am finding this so very hard. I am sure the virus makes it worse since no one can visit us. I think his confusion is worse and the thought that they said treatments might not work scares me.

@rosez I cannot begin to fathom what you are going through nor will I try to, but I too am a caretaker/caregiver for someone diagnosed with GBM and I think we can all agree that it is NOT an easy job and almost always an uphill battle. Caretaking and caregiving, in my opinion, are sometimes just as hard as the battles our loved ones fight because its an unseen and unheard battle. We cannot experience the pain/suffering they are going through but yet we see and feel its repercussions. And at times, it feels as though there's no one there to care for us or ask us how WE are doing. As a medical student and a future physician, I am constantly reminded about the power and importance of self-care because without self-care we cannot care for others. I am not sure if you are a reader, but I personally find strength & hope from books, social media and forums like these. Here are a list of some books that have helped me & hope will help you too:
1. The Caregiver’s Challenge: Living, Loving, Letting Go By Maryann Schacht, Psychotherapist
2. The Fearless Caregiver: How to get the best care for your loved one and still have a life of your own
By Greg Barg
3. The Conscious Caregiver: A mindful approach to caring for your loved one without losing yourself
By Linda Abbit

Please let us know if there are other ways we can support you & each other through these grueling times, and like someone once said to me, "this too shall pass."

I am leaving this post. My husband is not getting better and I am so sad. I have an appointment with a therapist tomorrow but don’t believe I will be able to keep it and my husband canceled his plans for tomorrow so I will have no privacy for a virtual meeting.

@rosez that’s so sad! You have done so much for your husband! Can your husband not be left alone? Maybe when he naps, you could have a phone talk with the therapist. Can you try that? And, please don’t leave! We’re here for you.
Maybe you could join one of the groups that @colleenyoung mentioned at the beginning of this discussion. Will you take a look at them?

My husband does not nap. He can't be left alone for more than an hour. I can't talk to therapist when he is home because I know that i would cry and he would feel terrible

I am leaving this post. My husband is not getting better and I am so sad. I have an appointment with a therapist tomorrow but don’t believe I will be able to keep it and my husband canceled his plans for tomorrow so I will have no privacy for a virtual meeting.

@rosez this must be hard to not be able to talk to your therapist today as planned. Might it be possible for you to talk to your therapist through texting rather than by phone or video?

I know that we are not the same as a therapist, but keep in mind that you can always type with us here on Mayo Clinic Connect.