@rosez I cannot begin to fathom what you are going through nor will I try to, but I too am a caretaker/caregiver for someone diagnosed with GBM and I think we can all agree that it is NOT an easy job and almost always an uphill battle. Caretaking and caregiving, in my opinion, are sometimes just as hard as the battles our loved ones fight because its an unseen and unheard battle. We cannot experience the pain/suffering they are going through but yet we see and feel its repercussions. And at times, it feels as though there's no one there to care for us or ask us how WE are doing. As a medical student and a future physician, I am constantly reminded about the power and importance of self-care because without self-care we cannot care for others. I am not sure if you are a reader, but I personally find strength & hope from books, social media and forums like these. Here are a list of some books that have helped me & hope will help you too:
1. The Caregiver’s Challenge: Living, Loving, Letting Go By Maryann Schacht, Psychotherapist
2. The Fearless Caregiver: How to get the best care for your loved one and still have a life of your own
By Greg Barg
3. The Conscious Caregiver: A mindful approach to caring for your loved one without losing yourself
By Linda Abbit

Please let us know if there are other ways we can support you & each other through these grueling times, and like someone once said to me, "this too shall pass."

Hello @rosez,

I am so sorry to hear about your frustration. Being a caregiver to a critically ill loved one is the hardest task that we can face. I am also sorry to hear that you are receiving criticism from your husband as well as other family members.

It is important for you to get some help. Will you call one of the senior agencies in your area and hire someone to help you. When my mom was at her very worst, I had an agency send a person by to drive us both to appointments and help me with my mom's walker, etc. getting it in and out of the car as well as assisting her in and out of the car and to appointments. it cost a bit of money and she was reluctant for someone outside the family to get involved. I did explain to her that I was older and had health problems and we must have help. She conceded and accepted the help and paid for it. It was so good for me. Right now, you must consider your needs, not just the needs of your husband. If you become injured, hurt, or disabled during this process you will not be able to help him at all.

Will you call and get some help?