@btwest6, Welcome to Connect. I want to say how thrilled I am to hear about your husband's transplant and his ongoing recovery.
You are not alone to ask questions. On Connect, we are recipients and caregivers, and we have a unique shared experience that makes us all experts of our experiences. We always advocate for being proactive in our health, and we rely on our transplant teams for medical advice. Have you mentioined this to the transplant team? It could very well be from medications that he is currently taking and as time goes forward, dosages and his reaction might change. It also might be something that he will have to learn to live with.
You will notice that the title has been changed. I requested this because all organ transplant recipients share a similar post transplant period of adjusting and healing. I hope that this gives the newly transplanted patients and caregivers a place to meet each other and to share what is happening as recover they recover.
I would like to invite some members who have mentioned that they have recent experiences as organ transplant caregivers or recipients.
@seahorstmayo, @nkdonahue, @tjgisewhite, @stephanierp, @bobbayers, @jsw, @brenwhite, Did any of you experience post transplant hotflashes?
Do you have anything that you would like to ask or share about your post transplant experiences?
Here is a discussion where our members have shared quite a lengthy and informative conversation: Transplants > Living Life after your Transplant
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/
You can also access it in this blog that was created afterward by the transpoant team!
Pages > Transplant > Top Transplant Hacks: Patients Share Their Best Tips and Tricks
https://connect.mayoclinic.org/page/transplant/newsfeed-post/top-transplant-hacks-patients-share-their-best-tips-and-tricks/
Enjoy your day. Enjoy your life.
I honestly never thought about it—I assumed it was the temperature in my mom’s house—but yes, I definitely have hot flashes. Post transplant, I used to wake up multiple times every night while I was still undergoing dialysis and my kidneys were deciding whether or not they wanted to awaken and participate with my new liver (READ: to pee), so I can’t remember if the hot flashes were also a factor. As of today, though (one year on 5/10/2020!), the hot flashes are the obvious variable.
(So thank you for asking this question bc I never knew to ask it and now I know what I didn’t know I needed to know! 🙃)
They don’t wake me up every night but when they do, it’s only once or twice. I also wake up earlier than planned most days because I’m way too hot. Even in the winter.
My suggestion is to point a fan directly at your bed. On high.
Congrats on a successful transplant! I promise it gets easier 😊