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What do you do for Neuropathy itch?

Skin Health | Last Active: Mar 6 10:24am | Replies (313)

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@runnergirl

Hi @amandajro - Thanks so much for connecting. It's been about a year or so, progressively getting worse but controlled with the Claritin. My initial SFN symptoms started in my feet back in 2007. All of these random symptoms have gotten worse over the years, with an actual diagnosis in 2018 and finally just last year, 2020 it was defined as autonomic neuropathy. (13 years and 10 neurologists later.) I don't have many of the typical symptoms, but definitely numbness, tingling, and can no longer run. It's been devastating - I used to be a serious marathon runner. It's just heartbreaking. I was searching online for "athletes with small fiber neuropathy support groups" and this group came up on Google. I was wondering if there are any other athletes out there who are dealing with this condition too and can no longer participate in the sports they once loved. It's comforting being with others who can empathize. Thanks again, Amanda.

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Replies to "Hi @amandajro - Thanks so much for connecting. It's been about a year or so, progressively..."

I have replaced vigorous HIIt with a stationary bike . Totally boring, but good for cardio and and good sweat. We need both each day and time or distance challenges.

@runnergirl Heartbreaking for you not being able to run anymore. I understand. My daughter-in-law is an Ironman/Marathon runner, and absolutely NEEDS to run every day.
I can feel the depth of your loss myself, since I was a "marathon professional artist" and NEEDED to paint. I've lost the sight in my right eye as a result of Giant Cell Arteritis and can no longer paint. So many losses we all suffer.
Warm regards,
Laurie