What do you do for Neuropathy itch?

Please, please do not use topical steroids unless under the strictest application. My daughter has had eczema her whole life and multiple doctors have prescribed stronger and stronger steroids with no guidance on how to use them. When you stop taking the steroids because they don't work anymore you can go into Topical Steroid Withdrawal (TSW). This currently affects approx.12% of people using steroids inappropriately. Many times your doctor will not tell you about the danger. My daughter has been in extreme pain for the last six months and is still in so much agony with dry, cracked, oozing and bleeding skin, deep unrelating itch, extreme nerve pain, constant fatigue but unable to fall asleep. She describes herself as looking like a monster. It is utter hell. Please look up Topical Steroid Withdrawal or Red Skin Syndrome. This can affect babies too. Many doctors do not recognize TSW because they have no other treatment but if you investigate you will see for yourself and make an informed decision.

Please, please do not use topical steroids unless under the strictest application. My daughter has had eczema her whole life and multiple doctors have prescribed stronger and stronger steroids with no guidance on how to use them. When you stop taking the steroids because they don't work anymore you can go into Topical Steroid Withdrawal (TSW). This currently affects approx.12% of people using steroids inappropriately. Many times your doctor will not tell you about the danger. My daughter has been in extreme pain for the last six months and is still in so much agony with dry, cracked, oozing and bleeding skin, deep unrelating itch, extreme nerve pain, constant fatigue but unable to fall asleep. She describes herself as looking like a monster. It is utter hell. Please look up Topical Steroid Withdrawal or Red Skin Syndrome. This can affect babies too. Many doctors do not recognize TSW because they have no other treatment but if you investigate you will see for yourself and make an informed decision.

Please, please do not use topical steroids unless under the strictest application. My daughter has had eczema her whole life and multiple doctors have prescribed stronger and stronger steroids with no guidance on how to use them. When you stop taking the steroids because they don't work anymore you can go into Topical Steroid Withdrawal (TSW). This currently affects approx.12% of people using steroids inappropriately. Many times your doctor will not tell you about the danger. My daughter has been in extreme pain for the last six months and is still in so much agony with dry, cracked, oozing and bleeding skin, deep unrelating itch, extreme nerve pain, constant fatigue but unable to fall asleep. She describes herself as looking like a monster. It is utter hell. Please look up Topical Steroid Withdrawal or Red Skin Syndrome. This can affect babies too. Many doctors do not recognize TSW because they have no other treatment but if you investigate you will see for yourself and make an informed decision.

Hi @tanzy, I noticed that you wished to post a URL to web resources with your message. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. The link you wanted to post is not spam, so allow me to post it here.

- B.C. Woman Whose Skin Fell Off Warns About Steroid Cream Addiction https://www.huffingtonpost.ca/2015/05/15/steroid-cream-addiction_n_7236986.html

How is your daughter being supported through the withdrawal? How has she found relief?

Tanzy, I have a terrible time with Itch...a few years ago, a FB group I belong to discovered an Amino Acid Supplement, Beta Alanine. I take it for my itch and IT WORKS...and thousands who suffer from Aquagenic Pruritus (itch caused by water contact) are finding significant relief...Beta Alanine is often found in preworkout supplements and has been used for years safely. PLEASE tell her about it and I would love to hear if it works. I also have Cold Pruritus and it works for that as well. IT HAS CHANGED MY LIFE!! Recently 2 Stanford Dermatologist wrote and article on its effectiveness as a patient they had.

Hello Colleen,
My daughter Sasha has been living in the Netherlands for the past two years. She has a very supportive partner who has been doing his best to take care of her. I tried to fly from the States to help but cannot get into the country because of COVID 19. It is so upsetting. There is very little relief with TSW. Sometimes a cool pack helps and bandaging the wounds. At the beginning Sasha could not take a shower for weeks because even a cool bath would feel like scalding water, the pain would last for hours and she would cry with exhaustion. The last 2 weeks she has been able to tolerate the water slightly better but the pain and constant itching is a daily uphill battle. Atarax sometimes lessons the itch and makes you sleepy bit many times it does not work. It is hard to know what to do. If you look at the link you will see the terrible steroid reaction. Thanks for your support.

Kind regards, Tanzy