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What do you do for Neuropathy itch?

Skin Health | Last Active: Nov 24 1:56pm | Replies (315)

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@artscaping

Wow....that is a surprise.....the ups and downs of the itch intensity controlled by a medication like Nortriptyline at 10 mg. I took that medication when I was first diagnosed with SFN (small fiber neuropathy). My bedtime dose was 50 mg and I truly believe it saved me from thoughts and deeds that were not in my best interests. I tapered off it last year because I felt that I was mentally in a much better place. I also substituted a night time tincture dose of medical cannabis.

I am really struggling right now......the itch starts at my finger tips with redness and inflammation (scratching) and then moves on up the back of my hand to the wrist and then on up to the elbow. It doesn’t seem like anything is helping except compression. So I wear compression sleeves and have just ordered compression gloves. I also have a dermatology appointment in January. She has seen the Harvard article so we will continue with our coping methodology.

Thank you for following up with me. I am very interested in your progress and hope you will continue our exchange.

May you have peace and contentment. (Please).
Chris

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Replies to "Wow....that is a surprise.....the ups and downs of the itch intensity controlled by a medication like..."

What blows my mind is how a low dose helps, but a higher dose makes it worse. I experienced it twice, same outcome.

@artscaping
Hi Chris, did you ever happen to try a massage/vibration unit on your itchy hand/arm? In case not, I do think there is a chance (perhaps small) that it might help, especially if you put on the compression sleeve right afterward (or do it with it on). I'm not referring to the sonicare idea (expensive if you do not have one to experiment with), but rather a different smallish unit which my wife Linda also uses.

Here is the Amazon link to it:
https://www.amazon.com/Uniclife-Massager-Portable-Shoulders-Operated/dp/B018U6Q1V2/ref=sr_1_1?dchild=1&keywords=Uniclife+Mini+Penguin+Massager%2CPortable+Massage%2C+Neck%2C+Shoulders+and+Back%2C+Battery+Operated%2C+White&qid=1607787462&sr=8-1
Maybe you already have something similar, but the vibrations this thing puts out are pretty strong & deep for its size and cost. I probably seem like I am beating a dead horse here, but I just think this might help your hand/arm itch areas if you have not tried it. I just feel so much compassion for you with this. I know how difficult it has been watching my wife suffer with it..

Best, Hank

PS: I promise this will be the last time I will bring this idea up unsolicited on Connect. I don't want to seem tedious. 😊

@artscaping Hi Chris, I don't want to be redundant, so I only say that I am so sorry for your severely painful itching. Hank said so much, that you don't need to read again, but my heart hears you. My love and support, LoriRenee1

How do you get medical cannabis? Is it different than what you can get over-the-counter.