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What do you do for Neuropathy itch?

Skin Health | Last Active: Nov 24 1:56pm | Replies (315)

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@bjbednarz

Something I've forgotten to mention earlier. My neurologist gave me Nortriptyline,10mg, two once a day. That seemed to help so I asked for a higher dose. She increased the dosage to 25mg, one a day. When I increased the dosage, the itching got worse. How can that be, that makes no sense. So, I stopped taking it since it obviously wasn't helping. However, when I stopped, the itching became unbearable. She gave it back to me at the lower dose. The itching got a little better. Now, she increased it again and the itching went crazy. So, I open the capsule, pour out some of the medication, close it back up and have approximately a 20mg dosage. The itch is better, and any relief is wonderful.

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Replies to "Something I've forgotten to mention earlier. My neurologist gave me Nortriptyline,10mg, two once a day. That..."

Wow....that is a surprise.....the ups and downs of the itch intensity controlled by a medication like Nortriptyline at 10 mg. I took that medication when I was first diagnosed with SFN (small fiber neuropathy). My bedtime dose was 50 mg and I truly believe it saved me from thoughts and deeds that were not in my best interests. I tapered off it last year because I felt that I was mentally in a much better place. I also substituted a night time tincture dose of medical cannabis.

I am really struggling right now......the itch starts at my finger tips with redness and inflammation (scratching) and then moves on up the back of my hand to the wrist and then on up to the elbow. It doesn’t seem like anything is helping except compression. So I wear compression sleeves and have just ordered compression gloves. I also have a dermatology appointment in January. She has seen the Harvard article so we will continue with our coping methodology.

Thank you for following up with me. I am very interested in your progress and hope you will continue our exchange.

May you have peace and contentment. (Please).
Chris