Good afternoon @bjbednarz, I woke up this morning, anxious to see if you had posted. As I read about your failed attempts, I realized that maybe we need to know more about neuropathy and the itch. I actually had a compounded lidocaine created for me by my neurologist. He kept making adjustments with the compounding pharmacist. It worked briefly for pain,
So...I got out my research and re-read everything. I am going to share the links that helped me understand how difficult it is to find a solution. Perhaps there is some knowledge here in the research that can tell you why a scavenger hunt for the perfect topical....or the nighttime capsule just won't work because the science behind them doesn't take into account the things they are learning about Neuropathic itch. Please for your own sanity read this research from Harvard Medical School called Itch and the Brain.
https://hms.harvard.edu/news/itch-brain.
According to the author Scott Edwards, itch runs along a neuronal interstate highway system that links the skin, the spinal cord, and the brain. This phenomenon is explained by Dr. Ma, a Harvard professor of neurobiology. The viewpoints and research of Anne Louise Oaklander, a very renowned clinician, are included. She summarizes that "diagnosis is difficult because there are many forms of neuropathic itch, to include: focal vs widespread, and peripheral vs central."
Let me know what you think of this research and projections. I have another one to follow about pruritus therapies.
And I do suggest that you become acquainted with neuroplasticity and its potential for changing the way our brain reacts to the itch signals. There is some hope that we can learn to reorient our brains. We call this practicing mindfulness or even mindful meditation. I have been able to control some of the external itches but am still not good enough to handle the internal ones.
May you be free of suffering and the causes of suffering.
Chris. @lorirenee1 @jesfactsmon
Chris and @bjbednarz , I can't stand that you both suffer from this horrible situation! I so hope and pray you find something to bring you lasting relief! This disease is so brutal and brings so much suffering! I will be upholding you both in my prayers that you will find comfort and relief ASAP and that it will last and be very affordable and assessable! Warmest wishes, Sunnyflower