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What do you do for Neuropathy itch?
Skin Health | Last Active: Nov 24 1:56pm | Replies (315)Comment receiving replies
@jesfactsmon Oh my goodness. Linda has also been in itch anguish, complete with sobs and screams. Jay saw this and was also shocked. He lay me down on the cool tile floor and began just to rub my body all over. He is not a therapist and yet somehow all of a sudden he had the "gift". Once it was released I fell into bed...with an extra dose of my nighttime medical cannabis. The inside pain is just excruciating. Has she had another incident? If not, how have you prevented it? Does the toothbrush work for inside pain? I can't seem to make it work for me.
Thanks for participating in this amazingly horrible affliction. Let's see what else we can find that has potential.
May you be safe and protected.
Chris
Replies to "@jesfactsmon Oh my goodness. Linda has also been in itch anguish, complete with sobs and screams...."
Chris @artscaping I need to clarify something. I think the reason the soncicare is so effective for Linda is that she only has PN in her feet & ankles. I don't think the sonicare would work as well in parts of the body where there is more fat tissue. Feet are mostly skin over bone on the tops and some pretty firm and tough skin on the bottoms. If one were to use it in certain other areas, like the stomach or the thigh, for example, it might not work so well. Just my theory. I don't know for sure as Linda only does it on her feet/ankles. Another thing is, even though the itch feels deep in her feet, deep is a relative term. I mean the deepest part of a foot is only a few centimeters in whereas a deep itch in the torso can be inches deep. I know this is pointing out the obvious but just to complete the explanation of why the sonicare works on feet but maybe not as well elsewhere.
She had this the worst during the April-June 2019 timeframe. That was when it was the most severe, and for her scary as it was SO intense. It seemed to become less regular and more sporadic after that (helped by the sonicare), with bouts occurring and then stopping. But she got into the habit early on of NEVER giving in to the scratching impulse so that probably helped too. At this point I think it has become a less prominent component in her overall constellation of problems.
Best, Hank
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Hi Hank, Christ and @bjbednarz, first of all Hank, I had no idea Linda is suffering from this itch situation too! I'm so far behind on my messages so please forgive. Boy what you all are going through sounds intolerable and brutal!!! I will be upholding you ALL in prayer that you will find just the right thing to work for you all and again, that it is easily accessable and affordable and that your doctors validate you and better yet if they are not educated in this than they will research and learn from your experiences so they can help other patients and even share what they've learned with other doctors. I'm not happy w/ my neurologist. She is nice but so blaze and seems clueless. Warmest wishes, Sunnyflower