Hi Chris, Oh boy can I understand your pain! I had no idea that the itching I was suffering from was related to my Small Fiber Neuropathy, and I was literally scratching the skin off certain parts of body. I tried all kinds of cortisone creams, nothing worked. finally in desperation I called my neurologist and she told me that is was part of my SFN. She then gave me a prescription for oxcarbazepine 150 mg 2 tabs twice a day. Well it's been a life saver!!! No more itching!! Most of my worst itching was in the warmer weather which is when the worst burning pain is also, so we're coming into the warmer months now, so we'll see how things go from here, but I got through the entire winter like a dream, and most of last summer was fairly good so I'm ever so hopeful for this one as well. I really hate this disease and I know that's a strong, word, but I've lived with it since 2006 and it's only progressed. Quite honestly my neurologist isn't much help, as she sent me all over half the state looking for a cause and in the end labeled it idiopathic. Then I read an article on SFN that said it's the end result of long standing Sjogren's Disease. I told her that I was diagnosed with mixed collagen vascular disease with Lupus and Sjogren's as the presenting diseases when I was 16ys old. That was 50 yrs ago. It would seem to me if she was worth her weight in knowledge she would have known that especially since the article was in a neurology journal that was easy to find on line. She had my entire medical history that my regular MD gave her right from the start. Anyway I hope you get some relief, it sure helped me.

Jump to this post