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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: Nov 10 6:11pm | Replies (362)
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@tbrigham

Thanks @rosemarya. I appreciate your kindness. Hurray for 11 years!
I started with a 1mg dosing of Sirolimus on Oct 5, 2020 and then they increased it to 2mg on Oct 30, 2020. After I spoke to my transplant team earlier this week, they agreed to let me go back to the 1mg dosing but had to go back 1mg x2 daily of Tacrolimus (Prograf). I am waiting to see if that helps! I did read through all of the side effects before starting the medication, but we all know that medications affect people differently.
Thank you also for connecting me with someone else who had a similar experience!

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Replies to "Thanks @rosemarya. I appreciate your kindness. Hurray for 11 years! I started with a 1mg dosing..."
Colleen Young, Connect Director | @colleenyoung | Nov 20, 2020

@tbrigham, I'd like to add my welcome and invite fellow heart transplant members into this discussion like @estrada53 @danab @jstoll and @scottij. I believe @estrada53 also has experience with Sirolimus.

Here's another discussion that might interest you:
- Tacrolimus: Temporary Cessation https://connect.mayoclinic.org/discussion/tacrolimus-temporary-cessation/

Are anti-diarrhea medications helping you? Do you work out of home or has COVID changed your work place to your home? That would be a silver-lining, wouldn't it?

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