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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: Nov 10 6:11pm | Replies (362)
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@rosemarya

@tbrigham, I want to welcome you to the transplant discussion group. I would also like to congratulate you on 11 years with your heart transplant, 11 years is special to me because I am 11 years out from liver and kidney transplant.
I don't take Sirolimus but I did read that diarrhea is a side effect with Sirolimus. Here is the Mayo Newsfeed Article: Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
tbrigham, How recently were you switched to Sirolimus? What has your doctor had to say about about a possible remedy?

I want to bring @contentandwell to this discussion. She has shared a similar experience.

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Replies to "@tbrigham, I want to welcome you to the transplant discussion group. I would also like to..."
Tara Brigham | @tbrigham | Nov 20, 2020

Thanks @rosemarya. I appreciate your kindness. Hurray for 11 years!
I started with a 1mg dosing of Sirolimus on Oct 5, 2020 and then they increased it to 2mg on Oct 30, 2020. After I spoke to my transplant team earlier this week, they agreed to let me go back to the 1mg dosing but had to go back 1mg x2 daily of Tacrolimus (Prograf). I am waiting to see if that helps! I did read through all of the side effects before starting the medication, but we all know that medications affect people differently.
Thank you also for connecting me with someone else who had a similar experience!

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