← Return to Transplant anti-rejection medications. What's your advice?

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@rosemarya

Good morning, @scottij. Congratulations on your new heart transplant!
On Connect, we value and we welcome all transplant experiences. At 8 months you are already an 'expert by experience' and by sharing with others, we can support others from the patients' perspective. I got a liver and kidney transplant in 2009, at Mayo Rochester. I had a difficult pre-transplant journey with a fantastic recovery. I came to Connect when I wanted to meet other transplant recipients.

I appreciate, (but have used different language) and I agree that some side effects are tolerable when considering the benefit. I felt more discomfort/side effects during my early post transplant period, however as time passes, and I have reached a stable dosage level and my side affects are a non-issue for me. My Mayo team keeps close watch on potential internal side effects. It looks like your team is on top of your body's reaction, and are being proactive in making adjustments that are going to benefit you.

Scottj, As a mentor, and fellow recipient, I invite you to scroll thru the many discussions in the transplant group. Know that as a member, you are welcome anywhere, any time to lend a word of support to someone, ask a question, or simply drop in and say 'hi'. Here are two to get you started and where you can meet som other members(@glinda, @danab, @dennisprater, @estrada53, @chugly11) who have also received heart transplants.
https://connect.mayoclinic.org/discussion/heart-transplant-231a15/

https://connect.mayoclinic.org/discussion/heart-transplant-recovery/

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Replies to "Good morning, @scottij. Congratulations on your new heart transplant! On Connect, we value and we welcome..."

Rosemary,
Thanks for reaching out and I apologize if my rough language may have offended you. I grew up with a father who made profanity sound like poetry. Perhaps I should have said I was alive to "complain about it". I actually I am surprised at some of the topics raised by people in this forum. I just want to tell them to bring this topic up with your care team and doctors rather than enjoining amateurs like me. Though I do appreciate your designation of me as an expert by experience. I am certainly not one by education and training.

I will ping your references and offer my gratitude ahead of any results.
Best always,
s!
Scott Jensen