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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: Apr 1 4:58am | Replies (320)

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@ladydidehart

Good morning! I’m 3 months post kidney transplant and doing very well!! Amen to that. My question is about my extreme hair shedding. It’s not chunks of hair loss, but more constant shedding of strands of hair. I’m not on Tachrolimus (sp?). I’m on Mycophenolate and Belatacept. Anyone else experience the same thing? How long does it last? Does Biotin or anything else help?

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Replies to "Good morning! I’m 3 months post kidney transplant and doing very well!! Amen to that. My..."

@ladydidehart, I want to welcome you to Mayo Connect. It is wonderful news to hear about your recent kidney transplant! Congratulations on your 3 month post transplant recovery. I assure you that you are in good company here with other patients who share a similar concern.

In the discussion -Transplant anti-rejection medications. What's your advice? - you will meet members who have asked about and also shared their own post transplant hair loss experiences. Click on the blue link, and you are there. I will meet you there.
I am also going to request that @colleenyoung move your post to that discussion.
https://connect.mayoclinic.org/discussion/your-anti-rejection-medications/

@ladydidehart Hi, and Welcome to Connect. Congratulations on your transplant, you look fabulous for being 3 months post-transplant.

I had some hair loss also and biotin was recommended by my transplant team also, I think it must be fairly standard. Of course you should always check with your team before adding anything to your regimen. I do not recall the dosage that my transplant team recommended. The only caution about taking biotin is if you having a thyroid test, you should stop taking it a few days before. It does not cause any problems with the thyroid, just with the testing, and that depends on the type of test that the lab uses. Apparently there is more than one TSH test.
JK