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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 23 hours ago | Replies (371)

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@rosemarya

@stephanierp, It is awesome to hear that you are doing well! I'm curious, Have you been back to the transplant department to see your doctor in person since your return home?
I have been taking tacrolimus and cellcept since my transplant in 2009, with minor dosage adjustments along the way. These meds are working well for me with a liver and a kidney. I am going to share information on both meds, but I have not seen any research on the long term effects of one vs the other. I think that your transplant doctor could help you with that information as well as information for why one is best for you over the other.
https://www.mayoclinic.org/drugs-supplements/tacrolimus-oral-route/description/drg-20068314
https://www.mayoclinic.org/drugs-supplements/sirolimus-oral-route/description/drg-20068199
If you will accept a some advice that was shared with me - Find a time for taking your meds at a time that will be the most convienient for your schedule. Remember that you will need to take the anti-rejection medications for the rest of your life, so do what will work best for you as your life returns to normal and your activity increases. My selected time is 8:00 AM and 8:00 PM. I have the alarm set on my iphone.

I hope you have a good visit tomorrow! I have never had a video chat with any of my doctors. I would love if you would drop a line and tell me about how it works for you!

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Replies to "@stephanierp, It is awesome to hear that you are doing well! I'm curious, Have you been..."

Hello Rosemary!
I have been having my transplant meetings via video chats. This has worked wonderfully well, as it saves my husband and I ,6 hours of travel and an overnight hotel stay, each month. I really like it! I sign in a few minutes before the meeting time and have my questions or concerns written out ahead of time. I actually had never met my doctor before the video meetings and feel that it works well, because I can see his face and he can see mine.

Thank your for your advice concerning taking meds at the same time each day.

Have a great day!