I take 1 mg Tacrolimus 2x a day; Myfortic 2x a day; and because I am only 11 weeks post-transplant, I am still taking Valcyte 1xdy and NebuPent 1xmonth (because I am allergic to Bactrim). I have had some stomach issues post-transplant, which I am attributing to Myfortic - not on an ongoing basis but about once a week. I'm not sure a lot can be done about that but will raise the issue with my doctor on our video chat tomorrow:) I take my medicines with food morning and night, but find I can be off half an hour to an hour, so I may need to rearrange my schedule a bit to be more consistent. Jolinda, I might try your idea of waking up early to take meds and then going back to bed!

The NebuPent nebulizer treatments are very rough! It burns the esophagus on the way down- like a chemical burn - and then causes asthmatic reactions for me for up to a week. Because of this, my doctor is switching me over to a drug called Dapsone. I only need to take the Valcyte for a total of 3-5 months and the Dapsone for a total of 6 months, so it is short-term stuff. And I can handle most things, for short periods of time.

I am interested in the research on Tacrolimus vs Sirolimus, in terms of long term challenges.

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