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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: Apr 1 4:58am | Replies (320)
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@kidsmomof9

Thanks JK ! My youngest kids (twins) are 23 so I would have to say meds, but then I take a lot of other meds as well. I like the advice about the sunscreen and have found the neutrogena 100spf to be almost impossible to detect on my skin and the price is reasonable. As far as hair loss goes, I will have to try biotin. Does anyone have a dosage recommendation? I do not absorb many vitamins and such well if at all. I have to get thiamine & iron infused and B12 injections as well as my Benlysta infusions. It makes life kinda crazy! My family is an insane example of an autoimmune cluster. I would be happy to elaborate if anyone is interested! Thanks again for allowing me to jump in here!

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Replies to "Thanks JK ! My youngest kids (twins) are 23 so I would have to say meds,..."
JK | @contentandwell | Apr 27, 2020

@kidsmomof9 I guess if your incontinence didn't start until recently we can't blame giving birth!
I take 2500 mcg of Biotin, twice a day. I believe that amount was what my transplant team recommended, I always try to follow their recommendations.
The transplant dermatologist I go to has said that anything over 30 SPF is a waste, and if it costs more to not bother! I have seen this mentioned in other writings also. If it's not more costly of course, it can't hurt.
I don't know anything about autoimmune conditions but it must be troublesome to have it widespread in your family. So far, we have not had any of those situations.
JK

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Rosemary, Volunteer Mentor | @rosemarya | Apr 28, 2020

@kidsmomof9, I am happy that you have joined this discussion. We are all patients and we are all learning together and supporting each other when we share our experiences. Thank you for sharing. I hope that the biotin will be something you can try. I was told 2500 would be okay for me to take after transplant and my hair and my nails improved (My finger and toe nails, suffered miserably during my months with critical liver failure.)

Did you know that on Connect there is an entire discussion group for Autoimmune Diseases? I invite you to take a look; to join in; and share with your family.
https://connect.mayoclinic.org/group/autoimmune-diseases/

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