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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 21 hours ago | Replies (371)

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@contentandwell

@jerrynord You really learned the hard way that using sunscreen is imperative for us post-transplant patients on immunosuppressants. I really hate the feel of sunscreen on my skin so I just try to avoid the sun whenever possible, but do use sunscreen if I cannot avoid it. I'm glad you are now using sunscreen.
People often forget about their hands, but they are in the sun very frequently and there are hand creams with SPFs specifically for that reason. When we are driving our hands are in the sun, and in these days of frequent handwashing, it's more important than ever to reapply a hand cream with an SPF of at least 30. Supergoop and Eucerin both make good hand creams with SPFs of 40 and 30 respectively, and they do not have a feminine scent to them.

@kidsmomof9 I notice you have been on Connect for a while but I do not recall welcoming you before. If I didn't, please let me now.
I'm glad you are finding this discussion helpful. Do you think your incontinence is from childbirth or from your medications? Did you have it prior to being prescribed Cellcept and prednisone? That's one of the things I am trying to figure out, if the medications are contributing to my incontinence, or if it is just due to other factors.
JK

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Replies to "@jerrynord You really learned the hard way that using sunscreen is imperative for us post-transplant patients..."

Thanks JK ! My youngest kids (twins) are 23 so I would have to say meds, but then I take a lot of other meds as well. I like the advice about the sunscreen and have found the neutrogena 100spf to be almost impossible to detect on my skin and the price is reasonable. As far as hair loss goes, I will have to try biotin. Does anyone have a dosage recommendation? I do not absorb many vitamins and such well if at all. I have to get thiamine & iron infused and B12 injections as well as my Benlysta infusions. It makes life kinda crazy! My family is an insane example of an autoimmune cluster. I would be happy to elaborate if anyone is interested! Thanks again for allowing me to jump in here!