← Return to Transplant anti-rejection medications. What's your advice?

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@estrada53

Hi Rosemary, Congratulations on your transplantversary! And thank you for all of your thoughtful responses on Mayo Connect. What would we do without you? My heart transplant was 3 years and nearly three months ago. Was placed on tacrolimus and cellcept and prednisone. Like you, I have an autoimmune disease - sarcoidosis - which caused the cardiomyopathy in my heart. Still on 5 mg on prednisone; it can cause bruising on my forearms - I do a lot of gardening and am a real klutz - but my doctor wants to keep the sarcoid at bay. I don't think I'll ever be off of it. The tacrolimus affected my kidney function - and I had measurable hair loss - and I was switched to sirolimus after 8 months post transplant. My hair now is thicker than ever before in my life. I have gained weight - nearly 20 pounds - I must say I am enjoying life and food. But I'm active and now that the weather is in the 90s in Arizona, I'm swimming every day and doing water aerobics. My skin is fragile in certain areas and I've had to have cauterization to stave off infection. But I'm not complaining. Every day is a gift!

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Replies to "Hi Rosemary, Congratulations on your transplantversary! And thank you for all of your thoughtful responses on..."

As far as dosing goes. - 1 mg of sirolimus, 500 mg of cellcept 2x day and 5 mg of prednisone. 🙂

Dear Estrada,
Talk to your docs , Tacrolimus
Had the same effects on my kidneys and creatinine #’s
They agreed to switch me to
Everolimus which is prescribed for kidney Transplants…… good news, my GFR # held steady, my kidney numbers were/are fine’. &
Creatinine #’s are steady.

Ps , I was told to never do gardening due to the possible
Fungal Diseases | Fungal | CDC
Valley Fever (Coccidioidomycosis) Valley fever, also called coccidioidomycosis, is an infection caused by the fungus Coccidioides. The fungus is known to live in the soil in the different areas in the USA
There are tests for it