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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 16 hours ago | Replies (371)

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@jolinda

Hair loss! One of my first side-effects showed up just days after being released from the hospital when I noticed gobs of hair falling out in the shower. I was so grateful for the new kidney and it seemed petty to care about my hair but I worried if it would never stop. One of my doctors at Mayo Clinic theorized that my hair loss was caused from a combination of trauma to my body from surgery, being severely anemic and as a side-effect from one of my anti-rejection drugs. She prescribed Vitron C (an high-potency iron supplement with vitamin c) to treat the anemia but there was nothing else she could do. My hair continued to fall out to a lessening degree for the next two years until it finally rebounded. I will never have the same hair but it got better. I was recently told hair loss should be treated by a dermatologist which I think is interesting.

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Replies to "Hair loss! One of my first side-effects showed up just days after being released from the..."

@jolinda I also had hair loss post transplant and started taking biotin. Within a few months the hair loss ended and it has gradually started coming back.

I didn't have hair loss after my liver transplant or if I did I didn't notice it. My transplant was 4 years ago. I'm on 1mg tacrolimus twice a day and still no issues. I hope your hair loss issue subsides!!!

My hair has experienced the same loss. My unusually thick individual hairs thinned and the number of hairs on my head crashed. I went from having too much hair for a ponytail holder to only needing the tiny kid stretchy plastic bands. I had a liver transplant and gastric sleeve done at the same time 26 months ago. My hair is not rebounding. I am not anemic.

Post transplant 18 years. In a few months will be 19 years.
No complications from the start of my transplant up to now.
I take 3mgs of prograf in the morning w/250mgs of Cellcept at night
&
2mgs of Prograf at night w/ 250mgs of Cellcept.
My immunosuppressived are brand name. Cannot take generic

Thank you for posting this. I am a kidney transplant recipient (7 months ago) and I started experiencing serious and worrysome hair loss less than a month ago. I have been told by transplant team there is not much to do besides over the counter remedies.