Laryngeal cancer (recurrence)
I was just told my laryngeal cancer returned. Next step complete laryngectomy. I'm scared! I don't want to lose my voice box. What can I do??
Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.
Thank you so much Jeff for taking the time to address my concerns. I would like to get into Mayo and see Dr. Moore if possible. I just don't know if I should have the biopsy done first.
My ENT diagnosed me and I got an MRI which clearly showed a very large tumor. No doctor felt I needed a biopsy until the removal at the time of surgery. My airway was blocked 90% and I had no choice but to have it removed whether or not it was cancerous. The challenge was how to remove it and salvage functionality. Given the amount of blockage you have to your airway you most likely will have to have it removed. You have to come to grips with the fact it has to be removed under any circumstances. If you call Dr. Moore and share the dire nature of your diagnosis and that you must do something in days they will work with you! I will call Dr. Moore personally if you want me too.
Jeff, you may be the Godsend I really need right now. I would say my tumors are blocking about 75%of my airway. Right now I can breathe pretty good. If you could, give me your number and I can text over my personal information. God bless you Jeff for the help. A phone call from you might help.
@msherfinski, I just read in another discussion that you are currently in the hospital and you just had the tracheostomy. How are you doing?
In which discussion was the post? Thanks, Jeff
Mark was helping Lioness in this discussion, @jeffk
https://connect.mayoclinic.org/discussion/mucus-in-throat-at-night/?pg=1#comment-392907
It was no picnic Coleen, but It probably saved my life. My surgeon said he never realized how blocked I was from the tumors. When I took a shower the day of surgery, I could not catch my breath!! I just got home today. Will be heading up to Mayo next week.
@msherfinski, glad to hear you're doing well. Was the surgery planned or did it end up being an emergency procedure?
I see you called Mayo Clinic and got an appointment. Can you tell me more?
msherfinski, We are all listening and following your progress, and of course, praying and rooting for you! Loli
Mark, so glad to hear that you are making progress with managing the trach and getting ready for your trip to Mayo. Our thoughts and prayers are with you and if you have any questions concerning living with a trach please reach out.