Laryngeal cancer (recurrence)

I live in Delafield and it is a 4 plus hour drive to Mayo. I am confident that with your diagnosis you will be able to quickly get into Mayo. I implore you to go there! They have the best doctors, research and treatment that you could ever desire. The Rochester location is the number 1 hospital and ENT in the country. You need to turn your concern and apprehension into proactive action. You need to control your own destiny and be your own advocate! Dr. Eric Moore's number to secure an appointment 507.284.3542. God Speed...

Boy o boy, what an amazing number of responses in quick order. You see @msherfinski, you're definitely not alone. Perhaps you're putting the cart before the horse. I say you're doing your homework and as @jeffk says being your own advocate. Good for you.

Should you wish to consider Mayo Clinic for a second opinion (and many are encouraging you to do so), here is the contact information http://mayocl.in/1mtmR63

Here's an article about the benefit of second opinions. Most physicians and specialists recognize their value.
- Mayo Clinic researchers demonstrate value of second opinions https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-researchers-demonstrate-value-of-second-opinions/

Keep asking questions. As @loli and @deborah said, we're here to accompany you.

Hi @phinken Paulette, I'm grateful that your first post on Mayo Clinic Connect was to offer support to a fellow traveler. You're so right that it is good that @msherfinski's team found the anomaly and now something can be done. It's so easy to panic when you only have the report and not yet a consult with the specialists.

Paulette, can you share a bit more about your laryngectomy? How did you prepare? What is/was the recovery and rehab like?

Hi, Msherfinski here.. Just talked to another ENT and was told the doctors at Froedert would probably scope me on my 1st visit, which has already been done by a good doctor yesterday and then do a biopsy. The problem is that if the tumors are cancerous, they would want to remove the voice box right then, otherwise I risk swelling and would need a trach to breathe. This is being thrown at me all at once and I just don't know what to do. Please help!!!

Make a phone call to Mayo first thing on Monday. Give yourself the weekend to try and process all that’s been thrown at you. Discuss with family and friends so that you have as much support as possible as you navigate this.

Thank you Deborahe for your input. It kind of made up my mind . Will work on getting into Mayo on Monday. God Bless you!!

All the best to you. We’re in your corner!

Thank you Colleen Young. Mine was discovered late and was very complicated. It was June 2019.. I don't think it would be helpful to share in this group. Thank you

Hi, this is msherfinski. I've received a couple of doctors names from you wonderful people. I have Dr.Eric Moore(507-516-4392). From Jeff. I also have a Dr. Jan Kasperbauer. From Deborahe. My cancer is 21/2 years post radiation. My ENT said it was extensive occurrence, now on both sides and I am a likely candidate for complete laryngectomy. I need to find the best in this field, so I can call them for availability and then try to get a referral. Any other names and phone numbers?? I sure could use your help,. Thanks again !!

Hi Paulette here. I missed where you live but I think you are closer to Rochester. I believe you will find the best answers and care there. I live and was treated in Florida. Wishing you well on this journey.