Anyone had successful stem cell transplant for AML?
My wife has had a trial treatment at MD Anderson and did pretty well. Now she's scheduled for stem cell transplant which we know has risks. Just curious if anyone else here has been down that road.
Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.
Trust me, I'm not hearing voices or anything but I felt her presence last night as I was going to bed and I knew she would never want to be the source of my sorrow or pain so I knew, in order to honor her and her love, I will move forward with her in my heart and live my life. I have been talking to her out loud telling her that I love her as I did frequently this year when no other words would matter while she was going through what she went through. Somehow, it is comforting to me to just talk to her. I have been email with the widow of one of her cousins (she had a close knit, fairly large family all in the same town) and she told me she still does that 30 years after losing her husband! Speaking of family, her father was one of 6 brothers who all went off to WWII and all came home to this small (at that time) Texas town! I never got to meet Yvonne's father but I have felt a bond with him anyway and know I would have like to have talked with him... we both love gardening. I will miss being with Yvonne in the physical world but she will always be with me in spirit!
Brad, we are so sorry to hear this. Your whole family is in our prayers.
Hi @waveg Gretchen,
Thinking of you as you get ready or are in the process of your BMT. I look forward to hearing from you when you're able.
My heart goes out to you and your family. You are in our prayers.
Hi Coleen! Today I am finishing day -6. So far it’s all going very well. The anti nausea med makes me sleepy so I try to keep busy when those effects wear off. Thank you for checking in on me.
Brad,
I read all the threads and the October 6th passing of your wife brought tears to my eyes even though we never met. I hope you and your family heal soon. It takes time. There will always be people like us in which to reach out. I believe her presence is with you. ...Donald Castle
Hi Gretchen! I’m so glad Coleen reached out. I was thinking about you as well. Wow, day -6, your day of rest. Tomorrow is Day 0? Your new Birthday! Such a huge moment and yet it’s all so anticlimactic when it happens. ☺️ There will be some, hm, less than peachy days ahead for a couple of weeks. But they pass quickly enough bringing a second chance for life! I already know you have a very positive attitude and believe me it is the very best friend you can have during this journey. And it is one heck of a journey but definitely well worth it! Stay strong, stay positive...you’ve got this!!! Wishing you all the best going forward! Just focus on getting better but when you can, send us a quickie to let us know how you’re doing. And, always feel free to drop me a personal message if you have any questions or need a pep talk! As someone who has taken the same path, I’m happy to be your guide. Lori.
Hi Lori, Today was day 3 of chemo and day 0 will be on the 21st.....I’ve been sleepy for several hours due to the anti nausea meds. I’m not a napper, so this is new to me. The room service and people here have been great. I’m hopeful those less than peachy days aren’t so bad. As an optimist, who has never been really sick, I might be put in my place this time. However, it’s good to be forewarned and prepared. Thank you for all your encouragement Lori, you are a wonderful coach. I will keep you posted. Gretchen
Hi gretchen.
Hope you are doing reasonable. I can relate...I was inpatient at mayo clinic for 8 days here in Phoenix. Like you, have never been seriously sick, prior to my diagnosis of a complex case of stage 4 lymphoma.
Mayo clinic basically saved my life, although the attentive nursing staff knocked on my door every 30 minutes, 24 hours a day. Looking back, however, it was in my own best interest. I think they wanted to make sure I was still alive. And for the most part, the food was great.
So take care. All the best.
Donald Castle
Hi Gretchen! My bad. LOL. I was counting the wrong way! You and I sound similar. I was never a napper either nor ever been very ill until the AML. Through much prodding from the BMT-team...”Listen to your body”, I’ve learned napping is beneficial on many levels. You’re doing great and will be well taken care of! Thinking of you and wishing you well! Yes, please keep me (us) posted! I’m excited for you to be on the other side of the transplant. Honestly, i promise, the nausea will go away!! Huge hug! (Air hug).