Anyone had successful stem cell transplant for AML?

Now my wife is scheduled for MORE chemo. Is this normal?

It can be depending on her blasts and what not. Plus, there is the chemo before the SCT as well.

tmvania, if you haven't read the previous threads, my wife has already had the BMT/SCT so we know about chemo before and immediately after the transplant. We're 60 days out but the new chemo was scheduled about a week ago for later in the month so it seems as though it was routine. I have heard nothing about blasts since she was being treated only for MDS prior to the AML diagnosis.

Sorry! For some reason I was thinking your wife hadn't had her SCT yet. I personally have not heard of more chemo this far out. What do her doctors say it is for?

We'll ask that question tomorrow but thought I'd ask here first to see if, perhaps, this was routine. Thanks!

Hi Brad, while it’s not routine to receive more chemo after a SCT it also depends on the situation. AML is a tricky opponent. Even when we’re in remission occasionally a rouge cell or two has managed to hide out and re-emerge. That’s the goal of the new stem cells, to prevent the cancer from gaining a foot hold again.
My thoughts on this with the limited information available, recalling previous messages, your wife’s AML wasn’t able to be treated with conventional chemo so this planned round may be to seek and destroy any remaining blasts which might be lingering?? There are too many open questions to give a firm answer. Has she had a bone marrow biopsy and what were results?

Thanks, Lori! She just had her biopsy on Friday and there are no results yet but the chemo was planned at least a week ago or longer. I used to see peripheral blasts on her CBC's but don't think they are including them from this clinic.

Has anyone heard of stem cell transplant for Adhesive Archnodious

Not certain a full stem cell transplant would reverse Adhesive Archnoidous, however I have read articles regarding the experimental use of a person’s own stem cells to help heal the spinal cord damage. (I had similar symptoms of AA) Mayo Clinic has amazing doctors, technology and researchers in their neurology department. Might start there in your search for answers. Best wishes to you in the search for a cure!

Sorry I didn't update sooner. I've lost track of the timing but about 4 weeks ago we learned that her bone marrow is now 100% donor! YEA! Then last week we go the results back from her bone marrow biopsy and there were ZERO MUTATIONS! YEA AGAIN! She will still have 8 rounds of chemo, 5 days in a row each time, but the Onc said that is a preventative just in case something was missed. Seems like she's recovering nicely. She has had a couple of rounds of GVHD with a rash, no itching, but the prednisone has been very effective. Her energy and her mood are both up and life is almost back to normal. I printed comments from Lori and Ted for her and they were very helpful (THANK YOU BOTH!!!) just in knowing what to expect and understanding that the first few months are simply just hard... 90 days from transplant on the 9th.