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Anyone had successful stem cell transplant for AML?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 2, 2022 | Replies (163)Comment receiving replies
Thanks, Ted. My wife has been very private about all this. I had to get her permission to even tell her sister because they were wanting to identify potential donors. Our two kids know, our son was the donor and our daughter also sent in the kit. So, basically, it boils down to me. I wondered about PTSD! My wife had been writing her memoir before all this most recent phase started but she has quit writing. I know that part of it is lack of energy (she still sleeps a lot) and part of it is that she doesn't want to be negative... and there's not much positive in her world right now. Thanks for your response, it helps me to better understand what people experience going through the BMT process.
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Brad- what strikes me significantly is the she has you. What a gift. I know that you said you are asking all of this for her and not yourself and I can appreciate that deeply. And ... as others have shared, please do take care of yourself. It seems you are doing that well.
I can remember days when I had so little energy and just wanted to lay in bed each day. Making a few small goals each day was really helpful. Sometimes - taking a shower was on the list! And then perhaps just walking to the end of the block. Another thing I found helpful was to ask myself each day, “what do you want?” Any answer was ok - I just needed to make sure I was living from a deeper place and being honest about what I was feeling. Sometimes there can be a conflict between what I really desire and what I am actually doing each day.